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菲律宾一家三级护理医院中出生缺陷患儿母亲对出生缺陷成因的看法。

Beliefs on the causes of birth defects as perceived by mothers of children with birth defects in a tertiary care hospital in the Philippines.

作者信息

Felipe-Dimog Eva Belingon, Tumulak Ma-Am Joy Realce, Laurino Mercy Ygona, Daack-Hirsch Sandra, Silao Catherine Lynn Tipton, Conaco Ma Cecilia Gastardo, Padilla Carmencita David, Estacio Leonardo Rabena

机构信息

University of the Philippines Manila College of Medicine, Pedro Gil Street, Taft Ave, Ermita, 1000, Manila, Metro Manila, Philippines.

Department of Nursing, Mountain Province State Polytechnic College, 2616, Bontoc, Mountain Province, Philippines.

出版信息

J Community Genet. 2022 Apr;13(2):183-191. doi: 10.1007/s12687-021-00543-2. Epub 2022 Jan 7.

Abstract

There are several ethnolinguistic groups or ethnicities in the Philippines, and genetic counselors may encounter clients with diverse beliefs, inscribed by their culture, about health conditions. Thus, clients may attribute the cause of a birth defect to a socio-culturally based health belief. The present study aimed to explore the beliefs on the causes of birth defects held by mothers of children diagnosed to have birth defects. The study was conducted as a qualitative descriptive pilot study in Baguio General Hospital and Medical Health Center (BGHMC), a birth defect surveillance site tertiary care hospital in the Philippines. Participants were mothers of children diagnosed to have birth defects at the BGHMC. In-depth interviews were used to collect data from 18 participants aged 18-46 years. Birth defect conditions of the participants' children included congenital heart defect, cleft lip and palate, hydrocephalus, imperforate anus, hypospadias, and microcephaly. When the participants were asked about their views on the causes of birth defects in their children, they perceived that genetics or heredity, stress, a fall during pregnancy, maternal sickness, teenage pregnancy, thin uterine lining, twin-twin transfusion syndrome, and God's will have caused it. Findings also showed that mothers of children with the birth defect have both biomedically and socio-culturally based health beliefs. Awareness of these health belief systems will help the genetic counselor provide appropriate genetics education and psychosocial support to their clients.

摘要

菲律宾有几个民族语言群体或种族,遗传咨询师可能会遇到因文化而持有不同健康观念的客户。因此,客户可能会将出生缺陷的原因归因于基于社会文化的健康观念。本研究旨在探讨被诊断患有出生缺陷儿童的母亲对出生缺陷原因的看法。该研究是在碧瑶综合医院和医疗健康中心(BGHMC)进行的一项定性描述性试点研究,该中心是菲律宾一家出生缺陷监测点三级护理医院。参与者是在BGHMC被诊断患有出生缺陷儿童的母亲。采用深度访谈从18名年龄在18至46岁的参与者中收集数据。参与者孩子的出生缺陷情况包括先天性心脏病、唇腭裂、脑积水、肛门闭锁、尿道下裂和小头畸形。当询问参与者对其孩子出生缺陷原因的看法时,他们认为是遗传或 heredity、压力、孕期摔倒、母亲生病、少女怀孕、子宫内膜薄、双胎输血综合征以及上帝的旨意导致的。研究结果还表明,患有出生缺陷儿童的母亲既有基于生物医学的健康观念,也有基于社会文化的健康观念。了解这些健康观念体系将有助于遗传咨询师为客户提供适当的遗传学教育和心理社会支持。

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本文引用的文献

2
Update on twin-to-twin transfusion syndrome.双胎输血综合征的最新进展。
Best Pract Res Clin Obstet Gynaecol. 2019 Jul;58:55-65. doi: 10.1016/j.bpobgyn.2018.12.011. Epub 2019 Jan 5.
9
Cultural competency in genetic counseling.遗传咨询中的文化能力。
J Genet Couns. 1994 Dec;3(4):267-77. doi: 10.1007/BF01412372.
10
Knowledge of pregnant women about birth defects.孕妇对出生缺陷的认识。
BMC Pregnancy Childbirth. 2013 Feb 20;13:45. doi: 10.1186/1471-2393-13-45.

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