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自闭症谱系障碍的功能整体观:制定《国际功能、残疾和健康分类》核心组最终共识国际会议的结果。

The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets.

机构信息

1 Karolinska Institutet, Sweden.

2 Stockholm County Council, Sweden.

出版信息

Autism. 2019 Feb;23(2):449-467. doi: 10.1177/1362361318755522. Epub 2018 Jan 29.

Abstract

Autism spectrum disorder is associated with diverse social, educational, and occupational challenges. To date, no standardized, internationally accepted tools exist to assess autism spectrum disorder-related functioning. World Health Organization's International Classification of Functioning, Disability and Health can serve as foundation for developing such tools. This study aimed to identify a comprehensive, a common brief, and three age-appropriate brief autism spectrum disorder Core Sets. Four international preparatory studies yielded in total 164 second-level International Classification of Functioning, Disability and Health candidate categories. Based on this evidence, 20 international autism spectrum disorder experts applied an established iterative decision-making consensus process to select from the candidate categories the most relevant ones to constitute the autism spectrum disorder Core Sets. The consensus process generated 111 second-level International Classification of Functioning, Disability and Health categories in the Comprehensive Core Set for autism spectrum disorder-one body structure, 20 body functions, 59 activities and participation categories, and 31 environmental factors. The Common Brief Core Set comprised 60 categories, while the age-appropriate core sets included 73 categories in the preschool version (0- to 5-year-old children), 81 in the school-age version (6- to 16-year-old children and adolescents), and 79 in the older adolescent and adult version (⩾17-year-old individuals). The autism spectrum disorder Core Sets mark a milestone toward the standardized assessment of autism spectrum disorder-related functioning in educational, administrative, clinical, and research settings.

摘要

自闭症谱系障碍与各种社会、教育和职业挑战有关。迄今为止,尚无标准化的、国际公认的工具来评估自闭症谱系障碍相关的功能。世界卫生组织的《国际功能、残疾和健康分类》可以作为开发此类工具的基础。本研究旨在确定一个全面的、常见的简短的和三个适合年龄的自闭症谱系障碍核心组。四项国际筹备研究共产生了 164 个二级国际功能、残疾和健康候选类别。基于这一证据,20 名国际自闭症谱系障碍专家应用既定的迭代决策共识过程,从候选类别中选择最相关的类别来构成自闭症谱系障碍核心组。共识过程生成了 111 个二级国际功能、残疾和健康类别,包括自闭症谱系障碍全面核心组中的一个身体结构、20 个身体功能、59 个活动和参与类别以及 31 个环境因素。常见简短核心组包括 60 个类别,而适合年龄的核心组包括学前版(0 至 5 岁儿童)中的 73 个类别、学龄版(6 至 16 岁儿童和青少年)中的 81 个类别以及青少年和成年版(≥17 岁的个体)中的 79 个类别。自闭症谱系障碍核心组标志着在教育、行政、临床和研究环境中标准化评估自闭症谱系障碍相关功能的一个里程碑。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a79e/6376609/d5d5189e6418/10.1177_1362361318755522-fig1.jpg

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