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Measuring resilience after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Resilience item bank and short form.脊髓损伤后恢复力的测量:SCI-QOL恢复力条目库及简表的编制、验证与心理测量学特征
J Spinal Cord Med. 2015 May;38(3):366-76. doi: 10.1179/2045772315Y.0000000016.
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Identifying predictors of resilience at inpatient and 3-month post-spinal cord injury.确定脊髓损伤住院患者及伤后3个月恢复力的预测因素。
J Spinal Cord Med. 2016;39(1):77-84. doi: 10.1179/2045772314Y.0000000270. Epub 2014 Oct 9.
4
Resilience following spinal cord injury: a phenomenological view.脊髓损伤后的恢复力:一种现象学观点。
Spinal Cord. 2014 Mar;52(3):197-201. doi: 10.1038/sc.2013.159. Epub 2014 Jan 14.
5
Resilience in competitive athletes with spinal cord injury: the role of sport participation.脊髓损伤竞技运动员的韧性:运动参与的作用。
Qual Health Res. 2013 Aug;23(8):1054-65. doi: 10.1177/1049732313493673. Epub 2013 Jun 14.
6
Examining factors that contribute to the process of resilience following spinal cord injury.探讨导致脊髓损伤后恢复力形成的因素。
Spinal Cord. 2013 Jul;51(7):553-7. doi: 10.1038/sc.2013.25. Epub 2013 May 21.
7
Trajectories of resilience, depression, and anxiety following spinal cord injury.脊髓损伤后韧性、抑郁和焦虑的轨迹。
Rehabil Psychol. 2012 Aug;57(3):236-47. doi: 10.1037/a0029256.
8
Spinal cord injury-functional index: item banks to measure physical functioning in individuals with spinal cord injury.脊髓损伤功能指数:用于测量脊髓损伤个体身体功能的项目库。
Arch Phys Med Rehabil. 2012 Oct;93(10):1722-32. doi: 10.1016/j.apmr.2012.05.007. Epub 2012 May 16.
9
Psychosocial issues in spinal cord injury: a review.脊髓损伤的心理社会问题:综述。
Spinal Cord. 2012 May;50(5):382-9. doi: 10.1038/sc.2011.182. Epub 2012 Jan 24.
10
Developing a contemporary patient-reported outcomes measure for spinal cord injury.开发用于脊髓损伤的当代患者报告结局测量工具。
Arch Phys Med Rehabil. 2011 Oct;92(10 Suppl):S44-51. doi: 10.1016/j.apmr.2011.04.024.

影响脊髓损伤和疾病患者自我护理行为的因素

Factors Influencing Self-Care Behaviors in Persons with Spinal Cord Injuries and Disorders.

作者信息

LaVela Sherri L, Etingen Bella, Miskevics Scott

机构信息

Center of Innovation for Complex Chronic Healthcare (CINCCH), Health Services Research & Development, Department of Veterans Affairs, Hines VA Hospital, Hines, Illinois.

Center for Healthcare Studies, Institute for Public Health and Medicine, General Internal Medicine and Geriatrics, Feinberg School of Medicine, Northwestern University, Chicago, Illinois.

出版信息

Top Spinal Cord Inj Rehabil. 2016 Winter;22(1):27-38. doi: 10.1310/sci2201-27.

DOI:10.1310/sci2201-27
PMID:29398891
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5790026/
Abstract

Individuals with spinal cord injury/disorder (SCI/D) must learn to adjust to and manage functional challenges after SCI/D onset. For these individuals, resilience (ie, the adaptive response to stressful events) may be related to their willingness and ability to conduct self-care behaviors. The study objectives were to examine the relationship between patient-reported perceptions of independence in performing self-care behaviors and resilience among Veterans with SCI/D and to examine variables (including resilience) associated with high self-care scores (controlling for confounders). In this cross-sectional survey, we conducted bivariate analyses to examine differences in demographic, injury, and health characteristics and resilience scores for individuals with SCI/D. We conducted a multivariate block-design linear regression to examine factors associated with ability to perform self-care. Level of injury (β = 7.74, < .0001), resilience (β = 0.08, = .0216), marital status (β = 1.75, = .0445), and living arrangement (β = 4.37, < .0001) were positively related to higher self-care behaviors. Completeness of injury (β = -2.79, < .0001), age (β = -0.09, = .0052), age at injury (β = -0.05, = .0129), and number of comorbid health conditions (β = -0.72, < .0001) showed negative relationships with higher self-care. Self-care ability is related to multiple factors, including resilience. The positive relationship between resilience and self-care suggests that greater resilience, independent of injury level/severity, may contribute to improved self-care behaviors in individuals with SCI/D. Other factors that showed a positive relationship with self-care included younger age, living alone, paraplegic level injury, and fewer health conditions. Understanding the profile of persons with SCI/D with regard to self-care behaviors is important to the development of tailored interventions to improve self-care.

摘要

脊髓损伤/疾病(SCI/D)患者必须学会在SCI/D发病后适应并应对功能挑战。对于这些患者而言,复原力(即对应激事件的适应性反应)可能与他们进行自我护理行为的意愿和能力有关。本研究的目的是探讨脊髓损伤/疾病退伍军人自我报告的自我护理行为独立性认知与复原力之间的关系,并研究与高自我护理得分相关的变量(包括复原力)(控制混杂因素)。在这项横断面调查中,我们进行了双变量分析,以检查脊髓损伤/疾病患者在人口统计学、损伤和健康特征以及复原力得分方面的差异。我们进行了多变量块设计线性回归,以检查与自我护理能力相关的因素。损伤水平(β = 7.74,< .0001)、复原力(β = 0.08,= .0216)、婚姻状况(β = 1.75,= .0445)和居住安排(β = 4.37,< .0001)与更高的自我护理行为呈正相关。损伤完整性(β = -2.79,< .0001)、年龄(β = -0.09,= .0052)、受伤年龄(β = -0.05,= .0129)和合并健康状况数量(β = -0.72,< .0001)与更高的自我护理呈负相关。自我护理能力与多种因素有关,包括复原力。复原力与自我护理之间的正相关表明,更高的复原力,独立于损伤水平/严重程度,可能有助于改善脊髓损伤/疾病患者的自我护理行为。其他与自我护理呈正相关的因素包括年龄较小、独居、截瘫水平损伤和健康状况较少。了解脊髓损伤/疾病患者在自我护理行为方面的特征对于制定改善自我护理的针对性干预措施很重要。