• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

What Parents of Children With Complex Medical Conditions Want Their Child's Physicians to Understand.

作者信息

Carosella Angela, Snyder Alexis, Ward Erin

机构信息

Watertown, Massachusetts.

Brookline, Massachusetts.

出版信息

JAMA Pediatr. 2018 Apr 1;172(4):315-316. doi: 10.1001/jamapediatrics.2017.3931.

DOI:10.1001/jamapediatrics.2017.3931
PMID:29404579
Abstract
摘要

相似文献

1
What Parents of Children With Complex Medical Conditions Want Their Child's Physicians to Understand.患有复杂疾病儿童的家长希望孩子的医生了解的事情。
JAMA Pediatr. 2018 Apr 1;172(4):315-316. doi: 10.1001/jamapediatrics.2017.3931.
2
Advance care planning for children with special health care needs: a survey of parental attitudes.为有特殊医疗需求的儿童进行预先护理规划：家长态度调查
Pediatrics. 1996 May;97(5):682-7.
3
[Experiences and needs of parents of hospitalised children with disabilities and the health professionals responsible for the child’s health-care – A systematic review].[残疾住院儿童家长及负责儿童医疗保健的卫生专业人员的经历与需求——一项系统综述]
Pflege. 2015 Oct;28(5):263-76. doi: 10.1024/1012-5302/a000446.
4
Hospitalized children with chronic illness: parental caregiving needs and valuing parental expertise.患有慢性病的住院儿童：父母的护理需求及对父母专业知识的重视。
J Pediatr Nurs. 2001 Apr;16(2):110-9. doi: 10.1053/jpdn.2001.23157.
5
Child and Parental Perspectives on Communication and Decision Making in Pediatric CKD: A Focus Group Study.儿童和家长对小儿慢性肾脏病沟通和决策的观点：一项焦点小组研究。
Am J Kidney Dis. 2018 Oct;72(4):547-559. doi: 10.1053/j.ajkd.2018.05.005. Epub 2018 Jul 3.
6
Exploration of Parent-Provider Communication During Clinic Visits for Children With Chronic Conditions.探讨慢性疾病患儿就诊时的家长-医护人员沟通情况。
J Pediatr Health Care. 2018 Jan-Feb;32(1):21-28. doi: 10.1016/j.pedhc.2017.06.005. Epub 2017 Aug 31.
7
In the shadows: parents of seriously ill adult children.
Clin J Oncol Nurs. 2012 Aug;16(4):341-2. doi: 10.1188/12.CJON.341-342.
8
Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.父母对患癌濒死儿童的症状、生活质量、死亡特征及临终决策的看法。
Klin Padiatr. 2008 May-Jun;220(3):166-74. doi: 10.1055/s-2008-1065347.
9
Review of parental activation interventions for parents of children with special health care needs.针对有特殊医疗需求儿童的家长的家长激活干预措施综述。
Child Care Health Dev. 2018 May;44(3):401-426. doi: 10.1111/cch.12554. Epub 2018 Feb 27.
10
What parents want from doctors in end-of-life decision-making for children.家长对医生在儿童末期决策中的期望。
Arch Dis Child. 2014 Mar;99(3):216-20. doi: 10.1136/archdischild-2013-304249. Epub 2013 Dec 5.

引用本文的文献

1
Impact of serial clinical swallow evaluations and feeding interventions on growth and feeding outcomes in children with long-gap esophageal atresia after anastomosis: a retrospective cohort study.系列临床吞咽评估和喂养干预对长间隙食管闭锁吻合术后儿童生长及喂养结局的影响：一项回顾性队列研究
World J Pediatr. 2024 Dec;20(12):1293-1305. doi: 10.1007/s12519-024-00850-x. Epub 2024 Nov 15.
2
Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study.患有复杂疾病的青年在住院和康复期间的幸福感因素：一项初步研究。
PLoS One. 2023 May 4;18(5):e0285213. doi: 10.1371/journal.pone.0285213. eCollection 2023.
3
The Role of Care Coordinators for Children with Respiratory Technologies and Home Nursing.
呼吸治疗技术和家庭护理儿童的护理协调员的作用。
Pediatr Allergy Immunol Pulmonol. 2022 Jun;35(2):49-57. doi: 10.1089/ped.2021.0236.
4
The Mental and Physical Health of Mothers of Children with Special Health Care Needs in the United States.美国有特殊医疗需求儿童的母亲的身心健康。
Matern Child Health J. 2022 Mar;26(3):500-510. doi: 10.1007/s10995-021-03359-1. Epub 2022 Jan 24.
5
Development and validation of a self-reported questionnaire to assess occupational balance in parents of preterm infants.评估早产儿父母职业平衡的自报告问卷的制定和验证。
PLoS One. 2021 Nov 15;16(11):e0259648. doi: 10.1371/journal.pone.0259648. eCollection 2021.
6
A Qualitative Study of Family Caregiver Perceptions of High-Quality Care at a Pediatric Complex Care Center.儿科综合护理中心高质量护理的家庭护理人员认知的定性研究。
Acad Pediatr. 2022 Jan-Feb;22(1):107-115. doi: 10.1016/j.acap.2021.05.012. Epub 2021 May 19.
7
Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families.为患有严重神经功能障碍的儿童及其家庭提供儿科姑息治疗。
J Pain Symptom Manage. 2021 Sep;62(3):662-667. doi: 10.1016/j.jpainsymman.2021.01.008. Epub 2021 Jan 22.
8
Most Children With Medical Complexity Do Not Receive Care in Well-Functioning Health Care Systems.大多数患有复杂疾病的儿童并没有在运作良好的医疗体系中得到治疗。
Hosp Pediatr. 2021 Feb;11(2):183-191. doi: 10.1542/hpeds.2020-0182. Epub 2021 Jan 6.
9
Viewpoints from families for improving transition from NICU-to-home for infants with medical complexity at a safety net hospital: a qualitative study.在一家医疗保障医院，从家庭角度看改善患有复杂疾病的新生儿从新生儿重症监护病房到家庭过渡的问题：一项定性研究。
BMC Pediatr. 2019 Jul 5;19(1):223. doi: 10.1186/s12887-019-1604-6.
10
Supporting Parent Caregivers of Children with Life-Limiting Illness.为患有危及生命疾病的儿童的家长护理人员提供支持。
Children (Basel). 2018 Jun 26;5(7):85. doi: 10.3390/children5070085.