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母亲参与妇女健康和赋权计划的体验:残疾儿童的母亲。

Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability.

机构信息

Occupational Therapy Department, School of Primary and Allied Health Care, Monash University, Peninsula Campus, Building G, Level 4, Peninsula Campus, McMahons road, Frankston, VIC, 3192, Australia.

Women's Health Research Program, Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, 553 St Kilda Road, Melbourne, VIC, 3002, Australia.

出版信息

J Autism Dev Disord. 2018 Jun;48(6):2174-2186. doi: 10.1007/s10803-018-3486-0.

Abstract

Substantial research identifies mothers of children with a disability as a vulnerable group with compromised health outcomes and restrictions for their own self-care, social, economic and leisure participation. This study investigated perceptions and experiences of mothers following attendance at health education and empowerment workshops (Healthy Mothers Healthy Families). Mixed methods evaluated mothers' experiences. A pragmatic qualitative approach was applied to data analysis of interviews with mothers (N = 19). Four themes emerged: Changes for me; Changes for my family; Wisdom gained; and Worthwhile workshops. Mothers described feeling validated and empowered in this facilitated group intervention and valued education about women's health, tailored research findings, individualised goal setting, time to learn and share with other mothers, and the workshop environment.

摘要

大量研究表明,残疾儿童的母亲是一个弱势群体,她们的健康状况不佳,自身的自我护理、社会、经济和休闲参与受到限制。本研究调查了参加健康教育和赋权研讨会(健康母亲健康家庭)后母亲们的看法和经验。混合方法评估了母亲们的经验。采用实用的定性方法对母亲访谈数据进行分析(N=19)。出现了四个主题:我的变化;我的家庭的变化;获得的智慧;有价值的研讨会。母亲们在这种有组织的小组干预中感到被认可和赋权,她们重视有关妇女健康的教育、针对特定研究结果、个性化目标设定、学习和与其他母亲分享的时间,以及研讨会的环境。

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