评估脆性 X 综合征的感觉处理：脑体中心感觉量表（BBCSS）的心理计量学分析。
Evaluating Sensory Processing in Fragile X Syndrome: Psychometric Analysis of the Brain Body Center Sensory Scales (BBCSS).
机构信息
Department of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, USA.
Traumatic Stress Research Consortium, Kinsey Institute, Indiana University, Bloomington, IN, 47405, USA.
出版信息
J Autism Dev Disord. 2018 Jun;48(6):2187-2202. doi: 10.1007/s10803-018-3491-3.
Abstract
Individuals with fragile X syndrome (FXS), especially those co-diagnosed with autism spectrum disorder (ASD), face many sensory processing challenges. However, sensory processing measures informed by neurophysiology are lacking. This paper describes the development and psychometric properties of a parent/caregiver report, the Brain-Body Center Sensory Scales (BBCSS), based on Polyvagal Theory. Parents/guardians reported on 333 individuals with FXS, 41% with ASD features. Factor structure using a split-sample exploratory-confirmatory design conformed to neurophysiological predictions. Internal consistency, test-retest, and inter-rater reliability were good to excellent. BBCSS subscales converged with the Sensory Profile and Sensory Experiences Questionnaire. However, data also suggest that BBCSS subscales reflect unique features related to sensory processing. Individuals with FXS and ASD features displayed more sensory challenges on most subscales.
摘要
脆性 X 综合征（FXS）患者，尤其是伴有自闭症谱系障碍（ASD）共病的患者，面临着许多感觉处理挑战。然而，神经生理学指导的感觉处理测量方法却很缺乏。本文描述了基于自主神经系统理论的家长/照顾者报告——脑-体中心感觉量表（BBCSS）的开发和心理测量特性。家长/监护人报告了 333 名 FXS 患者的情况，其中 41%具有 ASD 特征。采用样本分割的探索性-验证性设计的因子结构符合神经生理学预测。内部一致性、重测信度和评分者间信度均良好到优秀。BBCSS 分量表与感觉统合量表和感觉经验问卷相吻合。然而，数据还表明，BBCSS 分量表反映了与感觉处理相关的独特特征。具有 FXS 和 ASD 特征的个体在大多数分量表上表现出更多的感觉挑战。
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