Van Natta Meredith, Burke Nancy J, Yen Irene H, Rubin Sara, Fleming Mark D, Thompson-Lastad Ariana, Shim Janet K
Department of Social and Behavioral Sciences, University of California, San Francisco, USA.
Department of Public Health, School of Social Sciences, Humanities and Arts, University of California, Merced, USA.
Sociol Health Illn. 2018 Mar;40(3):538-551. doi: 10.1111/1467-9566.12661. Epub 2018 Feb 8.
This article explores the complicated and often-contradictory notions of choice at play in complex care management (CCM) programmes in the US healthcare safety net. Drawing from longitudinal data collected over two years of ethnographic fieldwork at urban safety-net clinics, our study examines the CCM goal of transforming frequent emergency department (ED) utilisers into 'active' patients who will reduce their service utilisation and thereby contribute to a more rational, cost-effective healthcare system. By considering our data alongside philosopher Annemarie Mol's (2008) conceptualisation of the competing logics of choice and care, we argue that these premises often undermine CCM teams' efforts to support patients and provide the care they need - not only to prevent medical crises, but to overcome socio-economic barriers as well. We assert that while safety-net CCM programmes are held accountable for the degree to which their patients successfully transform into self-managing, cost-effective actors, much of the care CCM staff provide in fact involves attempts to intervene on structural obstacles that impinge on patient choice. CCM programmes thus struggle between an economic imperative to get patients to make better health choices and a moral imperative to provide care in the face of systemic societal neglect. (A virtual abstract of this paper can be viewed at: https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA).
本文探讨了美国医疗安全网复杂护理管理(CCM)项目中复杂且常常相互矛盾的选择观念。基于在城市安全网诊所进行的为期两年的人种志实地调查所收集的纵向数据,我们的研究考察了CCM的目标,即将频繁使用急诊科(ED)的患者转变为“积极”患者,这些患者将减少其服务使用量,从而有助于建立一个更合理、更具成本效益的医疗系统。通过将我们的数据与哲学家安妮玛丽·莫尔(Annemarie Mol,2008年)对选择与护理相互竞争逻辑的概念化相结合,我们认为这些前提往往会破坏CCM团队为支持患者并提供他们所需护理所做的努力——不仅是为了预防医疗危机,也是为了克服社会经济障碍。我们断言,虽然安全网CCM项目要对其患者成功转变为自我管理、具有成本效益的行为者的程度负责,但CCM工作人员提供的大部分护理实际上涉及试图干预影响患者选择的结构性障碍。因此,CCM项目在促使患者做出更好健康选择的经济要求与面对系统性社会忽视时提供护理的道德要求之间挣扎。(本文的虚拟摘要可在以下网址查看:https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA)