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公立大学附属医院肝移植患者的社会支持。

Social support for patients undergoing liver transplantation in a Public University Hospital.

机构信息

Faculty of Medicine, Federal University of Minas Gerais, Belo Horizonte, Brazil.

Faculty of Medical Sciences, State University of Campinas, Campinas, Brazil.

出版信息

Health Qual Life Outcomes. 2018 Feb 17;16(1):35. doi: 10.1186/s12955-018-0863-5.

DOI:10.1186/s12955-018-0863-5
PMID:29454342
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5816372/
Abstract

BACKGROUND

Several diseases may lead to the need for liver transplantation due to progressive organ damage until the onset of cirrhosis, resulting in changes in interpersonal relationships. Social Support for transplant candidates is an important variable, providing them with psychological and social well-being. This study aims to assess social support in chronic hepatic patients, waiting for liver transplantation.

METHODS

A cross-sectional study was conducted with 119 patients, for convenience sampling, from the liver transplant waiting list at a Brazilian University Hospital Outpatients. The information was collected through semistructured questionnaires, in four stages: 1) socioeconomic and demographic information 2) clinical aspects 3) feelings 4) Social Support Network Inventory (SSNI), to Brazilian Portuguese. The statistical analysis was conducted using ANOVA and multivariate linear regression analysis to evaluate the relationship between the scales of social support and the collected co-variables.

RESULTS

Average age was 50.2 ± 11.6, and 87 (73.1%) were men. Patients with alcohol and virus liver disease etiology had the same frequency of 28%. The MELD, without extrapoints, was 16.7 ± 4.9. Global social support family score was 3.72 ± 0.39, and Cronbach's alpha = 0.79. The multivariate analysis presented the following associations, age = [- 0.010 (95% CI = - 0.010 - -0.010); P = 0.001], etiology of hepatic disease = [- 0.212 (95% CI = - 0.37 - -0.05); P = 0.009], happiness = [- 0.214(95% CI = - 0.33 - -0.09) P = 0.001) and aggressiveness = [0.172 (95% CI = 0.040-0.030); P = 0.010).

CONCLUSIONS

The social support was greater when the patients were younger (18 to 30 years). Patients with alcoholic cirrhosis, regardless of whether or not they were associated with virus, had less social support. As for feelings, the absence of happiness and the presence of aggressiveness showed a negative effect on social support.

摘要

背景

由于进行性器官损伤导致肝硬化,几种疾病可能需要进行肝移植,从而导致人际关系发生变化。肝移植候选者的社会支持是一个重要的变量,为他们提供心理和社会福利。本研究旨在评估慢性肝脏疾病患者的社会支持,这些患者正在等待肝移植。

方法

这是一项横断面研究,通过便利抽样从巴西某大学医院门诊的肝移植候补名单中招募了 119 名患者。通过半结构化问卷收集信息,分为四个阶段:1)社会经济和人口统计学信息 2)临床方面 3)感受 4)社会支持网络量表(SSNI),并翻译成巴西葡萄牙语。使用方差分析和多元线性回归分析来评估社会支持量表与收集的协变量之间的关系。

结果

平均年龄为 50.2±11.6 岁,87 名(73.1%)为男性。酒精性和病毒性肝病病因的患者频率相同,均为 28%。无扩展点的 MELD 为 16.7±4.9。全球家庭社会支持评分 3.72±0.39,Cronbach's alpha=0.79。多元分析显示出以下关联,年龄= [-0.010(95%置信区间= -0.010 - -0.010);P=0.001]、肝脏疾病病因= [-0.212(95%置信区间= -0.37 - -0.05);P=0.009]、幸福感= [-0.214(95%置信区间= -0.33 - -0.09)P=0.001]和攻击性= [0.172(95%置信区间= 0.040-0.030)P=0.010]。

结论

当患者较年轻(18 至 30 岁)时,社会支持更大。患有酒精性肝硬化的患者,无论是否与病毒相关,社会支持都较少。至于感受,幸福感缺失和攻击性存在对社会支持有负面影响。

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Br J Health Psychol. 2017 Sep;22(3):481-501. doi: 10.1111/bjhp.12241. Epub 2017 May 5.
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A study on alcohol use and its related health and social problems in rural Puducherry, India.印度本地治里农村地区酒精使用及其相关健康和社会问题的研究。
J Family Med Prim Care. 2016 Oct-Dec;5(4):804-808. doi: 10.4103/2249-4863.201175.
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The effect of Liver Transplantation on the quality of life of the recipient's main caregiver - a systematic review.
COVID-19 Pandemic Stress-Induced Somatization in Transplant Waiting List Patients.
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Insights Into the Experience of Liver Transplant Recipients With Alcoholic Liver Disease: A Descriptive Qualitative Study.对酒精性肝病肝移植受者经历的洞察:一项描述性定性研究。
Transplant Direct. 2019 Nov 15;5(12):e506. doi: 10.1097/TXD.0000000000000951. eCollection 2019 Dec.
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Liver Int. 2017 Jun;37(6):794-801. doi: 10.1111/liv.13333. Epub 2016 Dec 31.
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