Jaiswal Jessica, Griffin-Tomas Marybec, Singer Stuart N, Lekas Helen-Maria
J Assoc Nurses AIDS Care. 2018 May-Jun;29(3):426-438. doi: 10.1016/j.jana.2018.01.001. Epub 2018 Jan 8.
Many low-income people of color living with HIV are not virally suppressed. More research is needed to understand how socially marginalized, disengaged, or inconsistently engaged people living with HIV (PLWH) contend with antiretroviral therapy (ART)-related challenges, particularly in the context of interactions with HIV care providers. Twenty-seven semi-structured interviews were conducted with low-income Black and Hispanic PLWH in the New York City area who were currently, or recently, disengaged from outpatient HIV health care at the time of the interview. Participants valued patient-centered health care in which they felt genuinely heard and cared for by their HIV clinicians. This desire was particularly pronounced in the context of wanting to change one's ART regimen. Participant emphasis on wanting to manage ART-related challenges with their providers suggests that HIV providers have an instrumental role in helping their patients feel able to manage their HIV.
许多感染艾滋病毒的低收入有色人种并未实现病毒抑制。需要开展更多研究,以了解社会边缘化、脱离治疗或治疗依从性差的艾滋病毒感染者(PLWH)如何应对抗逆转录病毒疗法(ART)相关挑战,尤其是在与艾滋病毒护理提供者互动的背景下。对纽约市地区低收入的黑人和西班牙裔艾滋病毒感染者进行了27次半结构化访谈,这些受访者在访谈时当前或最近已脱离门诊艾滋病毒医疗护理。参与者重视以患者为中心的医疗服务,在这种服务中,他们感到艾滋病毒临床医生真正倾听并关心他们。这种愿望在想要改变抗逆转录病毒疗法方案的情况下尤为明显。参与者强调希望与医疗服务提供者共同应对抗逆转录病毒疗法相关挑战,这表明艾滋病毒医疗服务提供者在帮助患者感到有能力管理自身艾滋病毒方面发挥着重要作用。