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关爱临终者及其家人:诠释、实践与情感劳动。

Caring about dying persons and their families: Interpretation, practice and emotional labour.

作者信息

Funk Laura M, Peters Sheryl, Roger Kerstin Stieber

机构信息

Department of Sociology, University of Manitoba, Winnipeg, MB, Canada.

School of Nursing, University of Manitoba, Winnipeg, MB, Canada.

出版信息

Health Soc Care Community. 2018 Jul;26(4):519-526. doi: 10.1111/hsc.12559. Epub 2018 Feb 20.

Abstract

The importance of emotional support for dying persons and their families has been well established, yet we know less about how care workers understand emotional processes related to death and dying, or how these understandings are connected to care practices and emotional labour at the end of life. The aim of this study was to explore how healthcare workers interpret and respond to emotional needs of dying persons and their families. Qualitative data were collected between 2013 and 2014 through in-depth, in-person interviews with 14 nurses and 12 healthcare aides in one Western Canadian city. Transcripts were analysed using an inductive, interpretive thematic coding approach and the analytic lens of emotional labour. Dominant interpretive frames of a "good death" informed participants' emotionally supportive practice. This included guiding patients and families to "open up" about their emotions to activate the grief process. There was concern that incomplete grieving would result in anger being directed towards care staff. The goal of promoting emotional sharing informed the work of "caring about." Although palliative philosophies opened up moral and professional space for "caring about" in the context of organisational norms which often discouraged these practices, the tension between the two, and the lack of time for this work, may encourage surface expressions rather than authentic emotional care.

摘要

情感支持对于临终者及其家人的重要性已得到充分证实,然而,我们对于护理人员如何理解与死亡和临终相关的情感过程,或者这些理解如何与临终关怀实践及情感劳动相联系,却知之甚少。本研究的目的是探讨医护人员如何解读和回应临终者及其家人的情感需求。2013年至2014年间,通过对加拿大西部一个城市的14名护士和12名医护助理进行深入的面对面访谈收集了定性数据。使用归纳性、解释性主题编码方法和情感劳动分析视角对访谈记录进行了分析。“善终”的主导解释框架影响了参与者的情感支持实践。这包括引导患者和家属“敞开心扉”表达他们的情感,以启动悲伤过程。有人担心悲伤不完整会导致愤怒指向护理人员。促进情感分享的目标影响了“关怀”工作。尽管姑息治疗理念在通常不鼓励这些做法的组织规范背景下为“关怀”开辟了道德和专业空间,但两者之间的紧张关系以及这项工作缺乏时间,可能会促使表面的表达而非真正的情感关怀。

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