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我的鼻窦炎教练:利用移动技术实现慢性鼻-鼻窦炎患者的自我管理。

mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology.

机构信息

European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.

Department of Respiratory Disease, University Hospital Arnaud de Villeneuve, Montpellier, France.

出版信息

Rhinology. 2018 Sep 1;56(3):209-215. doi: 10.4193/Rhin17.253.

Abstract

Mobile health technology is emerging to take a prominent position in the management of chronic diseases. These technologies aim at enhancing patient empowerment via education and self-management. To date, of all the different apps available for patients with sinus disease, none were developed by medical experts dealing with chronic rhinosinusitis (CRS). The European Forum for Research and Education in Allergy and Airway diseases (EUFOREA) has undertaken a multi-stakeholder approach for designing, developing and implementing a tool to support CRS patients in monitoring their symptoms and to provide patients with a digital support platform containing reliable medical information about their disease and treatment options. mySinusitisCoach has been developed by medical experts dealing with CRS in close collaboration with patients, primary care physicians and community pharmacists, meeting the needs of both patients and health care providers. From a research perspective, the generation of real life data will help to validate clinical studies, patient stratification and improve understanding of the socio-economic impact of CRS, thereby paving the way for better treatment strategies.

摘要

移动医疗技术正在兴起,在慢性病管理中占据突出地位。这些技术旨在通过教育和自我管理来增强患者的能力。迄今为止,在所有针对鼻窦疾病患者的不同应用程序中,没有一个是由专门治疗慢性鼻-鼻窦炎(CRS)的医学专家开发的。欧洲过敏和气道疾病研究与教育论坛(EUFOREA)采用多利益相关者的方法来设计、开发和实施一种工具,以支持 CRS 患者监测其症状,并为患者提供一个包含有关其疾病和治疗选择的可靠医学信息的数字支持平台。mySinusitisCoach 是由专门治疗 CRS 的医学专家与患者、初级保健医生和社区药剂师密切合作开发的,满足了患者和医疗保健提供者的需求。从研究的角度来看,真实生活数据的产生将有助于验证临床研究、患者分层,并提高对 CRS 的社会经济影响的理解,从而为更好的治疗策略铺平道路。

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