Oris Leen, Luyckx Koen, Rassart Jessica, Goubert Liesbet, Goossens Eva, Apers Silke, Arat Seher, Vandenberghe Joris, Westhovens René, Moons Philip
Faculty of Psychology and Educational Sciences, KU Leuven, Tiensestraat 102, Box 3717, 3000, Leuven, Belgium.
Research Foundation - Flanders, Brussels, Belgium.
J Clin Psychol Med Settings. 2018 Dec;25(4):429-440. doi: 10.1007/s10880-018-9552-0.
The present study examines the concept of illness identity, the degree to which a chronic illness is integrated into one's identity, in adults with a chronic illness by validating a new self-report questionnaire, the Illness Identity Questionnaire (IIQ). Self-report questionnaires on illness identity, psychological, and physical functioning were assessed in two samples: adults with congenital heart disease (22-78 year old; n = 276) and with multisystem connective tissue disorders (systemic lupus erythematosus or systemic sclerosis; 17-81 year old; n = 241). The IIQ could differentiate four illness identity states (i.e., engulfment, rejection, acceptance, and enrichment) in both samples, based on exploratory and confirmatory factor analysis. All four subscales proved to be reliable. Rejection and engulfment were related to maladaptive psychological and physical functioning, whereas acceptance and enrichment were related to adaptive psychological and physical functioning. The present findings underscore the importance of the concept of illness identity. The IIQ, a self-report questionnaire, is introduced to measure four different illness identity states in adults with a chronic illness.
本研究通过验证一份新的自陈问卷——疾病认同问卷（IIQ），探讨了慢性病患者的疾病认同概念，即慢性病融入个人认同的程度。在两个样本中评估了关于疾病认同、心理和身体功能的自陈问卷：患有先天性心脏病的成年人（22 - 78岁；n = 276）和患有多系统结缔组织疾病（系统性红斑狼疮或系统性硬化症；17 - 81岁；n = 241）。基于探索性和验证性因素分析，IIQ在两个样本中都能区分四种疾病认同状态（即吞噬、排斥、接受和充实）。所有四个分量表都被证明是可靠的。排斥和吞噬与适应不良的心理和身体功能相关，而接受和充实与适应性心理和身体功能相关。本研究结果强调了疾病认同概念的重要性。引入IIQ这一自陈问卷来测量慢性病成年人的四种不同疾病认同状态。
