Division of Newborn Medicine, The Floating Hospital for Children at Tufts Medical Center, Boston, MA, USA.
Tufts Medical School, Boston, MA, USA.
J Perinatol. 2018 Jun;38(6):718-727. doi: 10.1038/s41372-018-0076-0. Epub 2018 Feb 22.
The objectives of this study are as follows: (1) to determine the incidence of parental concern for mortality (PCM) and any potential predictors for it among parents of infants admitted to the Neonatal Intensive Care Unit (NICU), and (2) to explore physicians' perspectives with respect to PCM in the NICU and to examine current practices of addressing it.
Separate questionnaires were distributed to members of the AAP Section on Perinatal-Neonatal Medicine District I and to NICU parents post discharge, to gather perspectives from each group. A χ-analysis and linear regression were performed.
Response rate was 29% for the physician survey and 63% for the parent survey. Physician respondents believed that PCM increased with decreasing gestational age (GA) and reported having fewer discussions with parents of older infants about PCM. Parental report of PCM incidence was 48% overall. PCM was not associated with GA. PCM was associated with infant length of stay and occurrence of at least one discussion about PCM with physicians. Fifty-three percent of parents reported never having a discussion regarding PCM.
Although physicians believe that PCM increases with decreasing GA, parental report suggests that PCM is not associated with GA. Parents of full-term infants in particular may experience more PCM and desire for discussion than is currently recognized.
本研究的目的如下：（1）确定入住新生儿重症监护病房（NICU）的婴儿父母的死亡率担忧（PCM）发生率及其潜在预测因素，（2）探讨医生对 NICU 中 PCM 的看法，并检查解决该问题的现行做法。
分别向 AAP 围产期-新生儿医学分部 I 区的成员和 NICU 出院后的父母分发问卷，以从每个群体中收集观点。进行了卡方分析和线性回归。
医生调查的回复率为 29%，父母调查的回复率为 63%。医生受访者认为 PCM 随胎龄（GA）的降低而增加，并报告与年长婴儿的父母进行的 PCM 讨论较少。总体而言，父母报告的 PCM 发生率为 48%。PCM 与 GA 无关。PCM 与婴儿住院时间和与医生进行至少一次 PCM 讨论有关。53%的父母报告从未讨论过 PCM。
尽管医生认为 PCM 随 GA 的降低而增加，但父母的报告表明 PCM 与 GA 无关。特别是足月儿的父母可能会经历更多的 PCM 和对讨论的需求，这比目前认识到的要多。
