Theadom Alice, Rutherford Sandy, Kent Bruce, McPherson Kathryn
Person Centred Research Centre, Faculty of Health and Environmental Sciences, Auckland University of Technology North Campus , Auckland , New Zealand.
National Institute for Stroke and Applied Neuroscience, Faculty of Health and Environmental Sciences, Auckland University of Technology North Campus , Auckland , New Zealand.
Neuropsychol Rehabil. 2019 Oct;29(9):1464-1474. doi: 10.1080/09602011.2018.1440609. Epub 2018 Feb 25.
Understanding how people adjust following stroke is essential to optimise recovery and ensure services are responsive to people's needs. This study aimed to explore people's experiences over the first three years post-stroke and identify what helped or hindered recovery. As part of a longitudinal, qualitative descriptive study, 55 people and 27 significant others purposefully selected from a population-based stroke incidence study were interviewed 6, 12, 24 and 36 months post-stroke. Interviews were audio taped and transcribed verbatim. Participants described an ongoing process of . This process needed to be re-negotiated over time, as people experienced changes in their recovery, comorbidities and/or wider circumstances. The adjustment process continued over the three years post-stroke, even for those who perceived that they were recovering well. Rehabilitation services need to support patients to make sense of their stroke, navigate the health system, address individual concerns and priorities and to know what, when and how much to challenge themselves. Rehabilitation plans need to be revised as circumstances change to facilitate adjustment following a stroke.
了解人们中风后如何进行调整对于优化康复效果以及确保服务能够满足人们的需求至关重要。本研究旨在探讨人们在中风后的头三年中的经历，并确定哪些因素有助于或阻碍康复。作为一项纵向定性描述性研究的一部分，从一项基于人群的中风发病率研究中特意选取了55名患者和27名重要他人，在中风后的6个月、12个月、24个月和36个月进行了访谈。访谈进行了录音并逐字转录。参与者描述了一个持续的 过程。随着人们在康复、合并症和/或更广泛的情况方面经历变化，这个过程需要随着时间的推移重新协商。即使对于那些认为自己康复良好的人来说，调整过程在中风后的三年中仍在继续。康复服务需要支持患者理解自己的中风情况，在医疗系统中找到方向，解决个人担忧和优先事项，并知道挑战自己的内容、时间和程度。随着情况的变化，康复计划需要进行修订，以促进中风后的调整。
