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数据共享和研究参与者保护的伦理方面。

Ethical aspects of data sharing and research participant protections.

机构信息

Program in Human Sexuality, Department of Family Medicine and Community Health, University of Minnesota Medical School.

Drug Policy Research Center, RAND Corporation.

出版信息

Am Psychol. 2018 Feb-Mar;73(2):138-145. doi: 10.1037/amp0000240.

DOI:10.1037/amp0000240
PMID:29481107
Abstract

Open access is fast becoming the norm across science. Sharing research data broadly has the potential to accelerate scientific progress, optimize the value of data, and promote scientific integrity. However, data sharing also poses new practical and ethical challenges to the conduct of research with human participants. This article provides an overview of how open access to research data has impacted the core principles of research ethics-respect for persons, beneficence, and justice-and, in turn, how a reinterpretation of these principles translates to procedures for the protection of the rights and wellbeing of human research participants. (PsycINFO Database Record

摘要

开放获取正在迅速成为科学领域的规范。广泛分享研究数据有可能加速科学进步、优化数据价值,并促进科学诚信。然而,数据共享也给涉及人类参与者的研究带来了新的实际和伦理挑战。本文概述了开放获取研究数据如何影响研究伦理的核心原则——尊重人、行善和公正——以及这些原则的重新解释如何转化为保护人类研究参与者权利和福祉的程序。

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