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研究人员之间的生物医学数据共享:来自约旦的一项研究。

Biomedical Data Sharing Among Researchers: A Study from Jordan.

作者信息

Al-Ebbini Lina, Khabour Omar F, Alzoubi Karem H, Alkaraki Almuthanna K

机构信息

Department of Biomedical Systems and Informatics Engineering, Hijjawi for Engineering Technology, Yarmouk University, Irbid 21163, Jordan.

Department of Medical Laboratory Sciences, Faculty of Applied Medical Sciences, Jordan University of Science and Technology, Irbid 22110, Jordan.

出版信息

J Multidiscip Healthc. 2020 Nov 23;13:1669-1676. doi: 10.2147/JMDH.S284294. eCollection 2020.

Abstract

BACKGROUND

Data sharing is an encouraged practice to support research in all fields. For that purpose, it is important to examine perceptions and concerns of researchers about biomedical data sharing, which was investigated in the current study.

METHODS

This is a cross-sectional survey study that was distributed among biomedical researchers in Jordan, as an example of developing countries. The study survey consisted of questions about demographics and about respondent's attitudes toward sharing of biomedical data.

RESULTS

Among study participants, 46.9% (n=82) were positive regarding making their research data available to the public, whereas 53.1% refused the idea. The reasons for refusing to publicly share their data included "lack of regulations" (33.5%), "access to research data should be limited to the research team" (29.5%), "no place to deposit the data" (6.5%), and "lack of funding for data deposition" (6.0%). Agreement with the idea of making data available was associated with academic rank (=0.003). Moreover, gender (-value=0.043) and number of publications (-value=0.005) were associated with a time frame for data sharing (ie, agreeing to share data before vs after publication).

CONCLUSION

About half of the respondents reported a positive attitude toward biomedical data sharing. Proper regulations and facilitation data deposition can enhance data sharing in Jordan.

摘要

背景

数据共享是一种受到鼓励的做法,以支持所有领域的研究。为此,研究人员对生物医学数据共享的看法和担忧进行审视很重要,本研究对此进行了调查。

方法

这是一项横断面调查研究,在约旦的生物医学研究人员中展开,约旦作为发展中国家的一个例子。研究调查问卷包括有关人口统计学以及受访者对生物医学数据共享态度的问题。

结果

在研究参与者中,46.9%(n = 82)对向公众提供其研究数据持积极态度,而53.1%拒绝这一想法。拒绝公开共享数据的原因包括“缺乏监管”(33.5%)、“研究数据的获取应限于研究团队”(29.5%)、“没有存放数据的地方”(6.5%)以及“缺乏数据存放资金”(6.0%)。对提供数据这一想法的认同与学术职级相关(P = 0.003)。此外,性别(P值 = 0.043)和发表论文数量(P值 = 0.005)与数据共享的时间框架相关(即同意在发表之前还是之后共享数据)。

结论

约一半的受访者对生物医学数据共享持积极态度。适当的监管和便利的数据存放可以促进约旦的数据共享。

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