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The Illness Experience of Undocumented Immigrants With End-stage Renal Disease.未获得移民身份的终末期肾病患者的患病经历。
JAMA Intern Med. 2017 Apr 1;177(4):529-535. doi: 10.1001/jamainternmed.2016.8865.
2
Undocumented Immigrants and Access to Health Care.无证移民与医疗保健服务
JAMA Intern Med. 2017 Apr 1;177(4):536-537. doi: 10.1001/jamainternmed.2016.9209.
3
Hospice Access for Undocumented Immigrants.无证移民的临终关怀服务获取情况。
JAMA Intern Med. 2017 Apr 1;177(4):579-580. doi: 10.1001/jamainternmed.2016.8870.
4
End-of-Life Care for Undocumented Immigrants With Advanced Cancer: Documenting the Undocumented.晚期癌症无证移民的临终关怀:记录无证者情况
J Pain Symptom Manage. 2016 Apr;51(4):784-788. doi: 10.1016/j.jpainsymman.2015.11.009. Epub 2015 Dec 8.
5
Cancer statistics for Hispanics/Latinos, 2015.2015 年西班牙裔/拉丁裔癌症统计数据。
CA Cancer J Clin. 2015 Nov-Dec;65(6):457-80. doi: 10.3322/caac.21314. Epub 2015 Sep 16.
6
No Easy Talk: A Mixed Methods Study of Doctor Reported Barriers to Conducting Effective End-of-Life Conversations with Diverse Patients.艰难的谈话:一项关于医生报告的与不同患者进行有效临终谈话障碍的混合方法研究。
PLoS One. 2015 Apr 22;10(4):e0122321. doi: 10.1371/journal.pone.0122321. eCollection 2015.
7
End-of-Life Care for People With Cancer From Ethnic Minority Groups: A Systematic Review.少数民族癌症患者的临终关怀:一项系统评价。
Am J Hosp Palliat Care. 2016 Apr;33(3):291-305. doi: 10.1177/1049909114565658. Epub 2014 Dec 29.
8
Impact of timing and setting of palliative care referral on quality of end-of-life care in cancer patients.姑息治疗转介的时机和地点对癌症患者临终关怀质量的影响。
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Do unto others: doctors' personal end-of-life resuscitation preferences and their attitudes toward advance directives.己所不欲,勿施于人:医生个人的临终复苏偏好及其对预立医疗指示的态度。
PLoS One. 2014 May 28;9(5):e98246. doi: 10.1371/journal.pone.0098246. eCollection 2014.
10
Assessing health care services used by California's undocumented immigrant population in 2010.评估2010年加利福尼亚州无证移民人口所使用的医疗保健服务。
Health Aff (Millwood). 2014 May;33(5):840-7. doi: 10.1377/hlthaff.2013.0615.

美国非法移民的临终关怀

End-of-Life Care for Unauthorized Immigrants in the U.S.

机构信息

Stanford University School of Medicine, Stanford, California.

Stanford University School of Medicine, Stanford, California; VA Palo Alto Health Care System, Palo Alto, California.

出版信息

J Pain Symptom Manage. 2018 May;55(5):1400-1407. doi: 10.1016/j.jpainsymman.2018.01.012. Epub 2018 Feb 26.

DOI:10.1016/j.jpainsymman.2018.01.012
PMID:29496325
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7147834/
Abstract

The Universal Declaration of Human Rights recognizes the inherent dignity, the equal and unalienable rights to be universally protected for all humans irrespective of race, color, gender, language, religion, political or other opinion, national or social origin, property, birth or other status. Though this includes the right to dignity-conserving care for terminally ill unauthorized immigrants, access to quality end-of-life care eludes them. Most of the estimated 11.3 million unauthorized immigrants either entered the country without the knowledge of the U.S. Immigration and Customs Enforcement, or were admitted on a temporary visa and stayed past its expiration date. Unsafe living conditions, occupational hazards, lack of access to routine healthcare, scarceness of a social and financial support system, fear of deportation, discrimination and incarceration limit healthcare access of unauthorized immigrants. Lack of access to preventative primary care encounters often results in this population's dependence on acute emergency services for treatment. Lack of opportunity for advance care planning discussions and lack of eligibility to hospice services commonly contributes to poor end of life care. As unauthorized immigrants approach the last days of life, they may often die alone, away from their loved ones, with little-to-no psychosocial support in their final moments. This article provides an overview on end-of-life care for unauthorized immigrants and makes recommendations for potential strategies to providing humane care and support to this vulnerable population.

摘要

《世界人权宣言》承认人类固有的尊严和不可剥夺的权利,这些权利应普遍受到保护,不论种族、肤色、性别、语言、宗教、政治或其他见解、国籍或社会出身、财产、出生或其他身份如何。尽管这包括为病危的非法移民提供尊严维护性护理的权利,但他们仍然无法获得优质的临终关怀。据估计,约有 1130 万非法移民,要么是在美国移民和海关执法局不知情的情况下进入该国,要么是持临时签证入境,但签证已过期。不安全的生活条件、职业危害、无法获得常规医疗保健、社会和财政支持系统匮乏、害怕被驱逐出境、歧视和监禁,这些都限制了非法移民获得医疗保健的机会。由于无法获得预防性初级保健,这些人往往依赖急性急诊服务进行治疗。缺乏预先进行护理计划讨论的机会,以及没有资格获得临终关怀服务,通常导致临终关怀质量较差。随着非法移民接近生命的最后几天,他们可能常常独自死去,远离亲人,在生命的最后时刻几乎没有任何社会心理支持。本文概述了非法移民的临终关怀问题,并就为这一脆弱群体提供人道关怀和支持提出了潜在策略建议。