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美国非法移民的临终关怀

End-of-Life Care for Unauthorized Immigrants in the U.S.

机构信息

Stanford University School of Medicine, Stanford, California.

Stanford University School of Medicine, Stanford, California; VA Palo Alto Health Care System, Palo Alto, California.

出版信息

J Pain Symptom Manage. 2018 May;55(5):1400-1407. doi: 10.1016/j.jpainsymman.2018.01.012. Epub 2018 Feb 26.

Abstract

The Universal Declaration of Human Rights recognizes the inherent dignity, the equal and unalienable rights to be universally protected for all humans irrespective of race, color, gender, language, religion, political or other opinion, national or social origin, property, birth or other status. Though this includes the right to dignity-conserving care for terminally ill unauthorized immigrants, access to quality end-of-life care eludes them. Most of the estimated 11.3 million unauthorized immigrants either entered the country without the knowledge of the U.S. Immigration and Customs Enforcement, or were admitted on a temporary visa and stayed past its expiration date. Unsafe living conditions, occupational hazards, lack of access to routine healthcare, scarceness of a social and financial support system, fear of deportation, discrimination and incarceration limit healthcare access of unauthorized immigrants. Lack of access to preventative primary care encounters often results in this population's dependence on acute emergency services for treatment. Lack of opportunity for advance care planning discussions and lack of eligibility to hospice services commonly contributes to poor end of life care. As unauthorized immigrants approach the last days of life, they may often die alone, away from their loved ones, with little-to-no psychosocial support in their final moments. This article provides an overview on end-of-life care for unauthorized immigrants and makes recommendations for potential strategies to providing humane care and support to this vulnerable population.

摘要

《世界人权宣言》承认人类固有的尊严和不可剥夺的权利,这些权利应普遍受到保护,不论种族、肤色、性别、语言、宗教、政治或其他见解、国籍或社会出身、财产、出生或其他身份如何。尽管这包括为病危的非法移民提供尊严维护性护理的权利,但他们仍然无法获得优质的临终关怀。据估计,约有 1130 万非法移民,要么是在美国移民和海关执法局不知情的情况下进入该国,要么是持临时签证入境,但签证已过期。不安全的生活条件、职业危害、无法获得常规医疗保健、社会和财政支持系统匮乏、害怕被驱逐出境、歧视和监禁,这些都限制了非法移民获得医疗保健的机会。由于无法获得预防性初级保健,这些人往往依赖急性急诊服务进行治疗。缺乏预先进行护理计划讨论的机会,以及没有资格获得临终关怀服务,通常导致临终关怀质量较差。随着非法移民接近生命的最后几天,他们可能常常独自死去,远离亲人,在生命的最后时刻几乎没有任何社会心理支持。本文概述了非法移民的临终关怀问题,并就为这一脆弱群体提供人道关怀和支持提出了潜在策略建议。

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