University of Southern Denmark, Research Unit of General Practice, Research Initiative for Activity Studies and Occupational Therapy, JB Winsloews vej 9, 5000 Odense C, Denmark; University College Absalon, Department of Occupational Therapy, Parkvej 190, 4700 Naestved, Denmark; The Social and Health Academy, Vestensborg Alle 78, 4800 Nykoebing Falster, Denmark.
Wayne State University, Department of Health Care Sciences, 259 Mack Ave., Detroit, MI 48201, United States.
Health Place. 2018 May;51:11-18. doi: 10.1016/j.healthplace.2018.02.003. Epub 2018 Mar 2.
The purpose of this study was to explore how the identity of people with advanced cancer is influenced by their experiences of living at home. A total of 28 in-depth interviews were conducted with 22 people with advanced cancer and four spouses. Grounded theory guided the collection and analysis of data. Home tours and associated field notes augmented the interview data. The analysis revealed that support of participants' identity was reflected in their abilities to live and occupy the home during daily activities, and in the ways the home and objects functioned as referents to themselves and their past. Threats to their identity ensued as the home environment became unmanageable during daily activities and as homecare professionals and assistive devices entered the home. By supporting people with advanced cancer in maintaining daily activities in the home and reducing changes in the home caused by homecare it is possible to reduce loss of identity.
本研究旨在探讨晚期癌症患者的身份是如何受到其居家生活体验的影响。共对 22 名晚期癌症患者和 4 名配偶进行了 28 次深入访谈。扎根理论指导了数据的收集和分析。家访和相关的实地记录补充了访谈数据。分析结果表明，参与者的身份得到支持，反映在他们在日常生活活动中生活和占据家庭的能力，以及家庭和物品作为他们自己和过去的参照的方式。当家庭环境在日常生活活动中变得难以管理，以及家庭护理专业人员和辅助设备进入家庭时，他们的身份就会受到威胁。通过支持晚期癌症患者在家中维持日常活动，并减少家庭护理引起的家庭变化，可以减少身份的丧失。
