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慢性病患者家庭中的二元应对与自我调节策略:一项运用家庭访谈情感地图法的定性研究

Strategies of Dyadic Coping and Self-Regulation in the Family Homes of Chronically Ill Persons: A Qualitative Research Study Using the Emotional Map of the Home Interview Method.

作者信息

Sallay Viola, Martos Tamás, Chatfield Sheryl L, Dúll Andrea

机构信息

Institute of Psychology, University of Szeged, Szeged, Hungary.

College of Public Health, Kent State University, Kent, OH, United States.

出版信息

Front Psychol. 2019 Feb 28;10:403. doi: 10.3389/fpsyg.2019.00403. eCollection 2019.

Abstract

Environmental and emotional self-regulation skills play a critical role in promoting well-being of individuals and in encouraging healthy relationships. However, occurrence of chronic illness in one family member complicates routine dyadic coping processes for the couple. Additionally, according to environmental psychologists, self-regulation processes are influenced by individuals' perceptions of their socio-physical environments, and during times of chronic illness, the family home is frequently the primary site of dyadic coping. To date, few researchers have investigated the complex relationship among dyadic coping, the family home, and self-regulation processes in the context of chronic illness. The purpose of this paper is to report the results of qualitative research conducted to explore these relationships by analyzing participants' emotionally significant experiences within the family home. We purposively sampled and conducted in depth semi-structured interviews with 23 adults representing 10 families with one chronically ill adult family member. Representative illnesses included epilepsy (4) and chronic back pain (6). We used the Emotional Map of the Home Interview method (EMHI), an elicitation process in which participants are initially asked to place predefined positive and negative experiences on drawn diagrams of their homes. We analyzed the data through grounded theory coding methods, including open, axial and selective coding. Results of data analysis suggest that the family home operated as a critical socio-physical environment and had a profound impact on environmental and emotional self-regulation as well as on dyadic coping when one partner experienced chronic illness. Key selective codes derived from the data that reflect the variation and nuance within this impact included: "stress communication through the home space," "coping by spatial separation" and "coping by joint striving for at-homeness." These results reveal formerly hidden aspects of dyadic coping with chronic illness: the role of environmental cues, represented by the family home in this study, in perceptions of stress; the coordinated use of spatial-environmental contexts to engage the appropriate self-regulatory strategies for coping with illness-related stress. These findings demonstrate the utility of EMHI as an assessment tool and provide meaningful theoretical and practical information about dyadic coping among couples living with chronic disease.

摘要

环境和情绪自我调节技能在促进个体幸福以及鼓励健康人际关系方面发挥着关键作用。然而,一名家庭成员患有慢性病会使夫妻日常的二元应对过程变得复杂。此外,根据环境心理学家的说法,自我调节过程会受到个体对其社会物理环境的认知影响,而在慢性病期间,家庭住所常常是二元应对的主要场所。迄今为止,很少有研究人员在慢性病背景下探究二元应对、家庭住所和自我调节过程之间的复杂关系。本文的目的是报告一项定性研究的结果,该研究通过分析参与者在家庭住所内具有情感意义的经历来探索这些关系。我们有目的地选取了23名成年人作为样本,他们代表了10个有一名成年慢性病家庭成员的家庭,并进行了深入的半结构化访谈。代表性疾病包括癫痫(4例)和慢性背痛(6例)。我们使用了家庭访谈情绪地图法(EMHI),这是一种启发过程,参与者首先被要求在他们绘制的房屋图上标注预先定义的积极和消极经历。我们通过扎根理论编码方法分析数据,包括开放式编码、轴心式编码和选择性编码。数据分析结果表明,当一方伴侣患有慢性病时,家庭住所作为一个关键的社会物理环境,对环境和情绪自我调节以及二元应对产生了深远影响。从数据中得出的关键选择性编码反映了这种影响中的差异和细微差别,包括:“通过家庭空间进行压力沟通”、“通过空间分离进行应对”和“通过共同努力营造家的感觉进行应对”。这些结果揭示了二元应对慢性病以前隐藏的方面:在本研究中由家庭住所代表的环境线索在压力感知中的作用;空间环境背景的协调使用,以采用适当的自我调节策略来应对与疾病相关的压力。这些发现证明了EMHI作为一种评估工具的效用,并为慢性病患者夫妻之间的二元应对提供了有意义的理论和实践信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0f74/6403154/129285fb630c/fpsyg-10-00403-g001.jpg

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