Buelow Janice, Miller Wendy, Fishman Jesse
Questions or comments about this article may be directed to Janice Buelow, PhD RN FAAN, at
J Neurosci Nurs. 2018 Apr;50(2):74-80. doi: 10.1097/JNN.0000000000000353.
Nurses have become increasingly involved in overseeing the management of patients with complex medical conditions, including those with epilepsy. Nurses who are not specialists in epilepsy can play a central role in providing optimal care, education, and support to their patients with epilepsy, given the proper tools.
Our objective was to create a tool that can be used by nurses in the clinic setting to help facilitate discussion of topics relevant to enhancing medical care and management of patients with epilepsy. To address this need, a panel of epilepsy nursing experts used a patient-centered care approach to develop an Epilepsy Nursing Communication Tool (ENCT).
An initial set of topics and questions was created based on findings from a literature review. Eight nurse experts reviewed and revised the ENCT using focus groups and discussion forums. The revised ENCT was provided to nurses who care for patients with epilepsy but had not been involved in ENCT development. Nurses were asked to rate the usability and feasibility on a 5-point scale to assess whether the tool captured important topics and was easy to use.
Ten nurses provided usability and feasibility assessments. Results indicated strong tool utility, with median scores of 4.5, 4, and 4 for usefulness, ease of use, and acceptability, respectively.
The preliminary ENCT shows promise in providing a tool that nurses can use in their interactions with patients with epilepsy to help address the complexity of disease management, which may help improve overall patient care.
护士越来越多地参与到对患有复杂疾病（包括癫痫患者）的患者管理监督工作中。只要有合适的工具，非癫痫专科护士在为癫痫患者提供最佳护理、教育和支持方面可发挥核心作用。
我们的目标是创建一种工具，供临床护士使用，以促进与加强癫痫患者医疗护理和管理相关主题的讨论。为满足这一需求，一组癫痫护理专家采用以患者为中心的护理方法开发了癫痫护理沟通工具（ENCT）。
根据文献综述结果创建了一组初始主题和问题。八位护士专家通过焦点小组和讨论论坛对ENCT进行了审查和修订。将修订后的ENCT提供给照顾癫痫患者但未参与ENCT开发的护士。要求护士以5分制对可用性和可行性进行评分，以评估该工具是否涵盖重要主题且易于使用。
十位护士提供了可用性和可行性评估。结果表明该工具实用性强，有用性、易用性和可接受性的中位数评分分别为4.5、4和4。
初步的ENCT有望提供一种工具，护士可在与癫痫患者互动时使用，以帮助应对疾病管理的复杂性，这可能有助于改善整体患者护理。
