Nguyen Natalie, Renom-Guiteras Anna, Meyer Gabriele, Stephan Astrid
1 Institut für Gesundheits- und Pflegewissenschaft, Martin-Luther-Universität Halle-Wittenberg.
2 Abteilung für Geriatrie, Klinik Parc de Salut Mar, Autonome Universität Barcelona, Barcelona, Spanien.
Pflege. 2018 Jun;31(3):155-166. doi: 10.1024/1012-5302/a000611. Epub 2018 Mar 8.
Background: Nursing home placement of people with dementia can become necessary when informal care is no longer sufficient. Informal carers experience the transition period as an additional burden. Aim: Experiences and views of informal carers and healthcare professionals regarding the transition from people with dementia to a nursing home are investigated to improve the support for informal carers. Method: This secondary analysis included data from all five focus groups with n = 30 informal carers and healthcare professionals conducted as part of the “RightTimePlaceCare” project. To supplement the material which resulted from a single interview question, a literature analysis with the same focus was conducted. Results: The merged results indicated that informal carers needed professional support early on at home until after the nursing home placement. Concerns regarding nursing homes, financial aspects and family related issues were important aspects in the decision making. Healthcare professionals recommended provision of early guidance regarding those matters and making own experiences with nursing homes. Healthcare professionals should serve as mediators during the transition process and improve the collaboration between service providers. Conclusions: Empowering families to make informed choices could be facilitated by offering advice at home about their options for formal support services, financial support, and housing solutions. Healthcare professionals should support caregivers to make a decision, coordinate the placement and to cope with the new situation.
当非正式照护不再充分时,痴呆症患者可能有必要入住养老院。非正式照护者将过渡期视为额外负担。目的:调查非正式照护者和医护人员对于痴呆症患者向养老院过渡的经历和看法,以改善对非正式照护者的支持。方法:这项二次分析纳入了作为“适时适地照护”项目一部分开展的、由30名非正式照护者和医护人员组成的所有五个焦点小组的数据。为补充由单个访谈问题得出的材料,还进行了具有相同重点的文献分析。结果:合并结果表明,非正式照护者在患者入住养老院之前及之后的一段时间内都需要在家中获得专业支持。对养老院的担忧、财务方面以及与家庭相关的问题是决策中的重要方面。医护人员建议就这些事项提供早期指导,并分享他们在养老院的亲身经历。医护人员应在过渡过程中充当调解人,并改善服务提供者之间的协作。结论:通过在家中就正式支持服务、经济支持和住房解决方案的选择提供建议,可促进家庭做出明智选择。医护人员应支持照护者做出决策、协调安置并应对新情况。