HRB Clinical Research Facility Galway, National University of Ireland Galway, Galway University Hospitals, Galway, Ireland.
School of Nursing and Midwifery Studies, National University of Ireland, Galway, Ireland.
J Clin Nurs. 2018 Jul;27(13-14):2814-2824. doi: 10.1111/jocn.14344. Epub 2018 Apr 19.
To explore healthcare professionals' and patients' perceptions of the potential use of a Transition Readiness Scale in cystic fibrosis care. This included an examination of barriers and facilitators to its implementation along with the identification of key items to include in a Transition Readiness Scale.
Due to increasing life expectancy and improved quality of life, more adolescents with cystic fibrosis are transitioning from paediatric to adult health care. To assess and correctly manage this transition, a more structured approach to transition is advocated. This can be achieved using a Transition Readiness Scale to potentially identify or target areas of care in which the adolescent may have poor knowledge. These key items include education, developmental readiness taking into account relationships, reproduction, future plans and self-management skills. Existing tools to gauge readiness concentrate mainly on education and self-care needs assessment as their key items. Currently, there is no specific cystic fibrosis Transition Readiness Scale in use in Ireland or internationally.
The study used a descriptive qualitative design.
Data were collected using semi-structured interviews (n = 8) and analysed using a thematic approach.
The findings identified the potential benefits of this tool and second the resources which need to be in place before its development and implementation into cystic fibrosis services.
Transition Readiness Scales have substantial relevance with cystic fibrosis services emphasising the importance of establishing the necessary resources prior to its implementation. These were identified as more staff, a dedicated private space and staff training and education.
Significant resources are needed to fully integrate Transition Readiness Scales in practice. The study findings suggest multidisciplinary collaborations, and patient engagement is pivotal in planning and easing the transition process for adolescents with cystic fibrosis.
探索医疗保健专业人员和患者对在囊性纤维化护理中使用过渡准备量表的潜在看法。这包括检查实施的障碍和促进因素，以及确定过渡准备量表中包含的关键项目。
由于预期寿命的延长和生活质量的提高，越来越多的患有囊性纤维化的青少年正在从儿科过渡到成人保健。为了评估和正确管理这种过渡，提倡采用更结构化的过渡方法。这可以通过使用过渡准备量表来实现，以潜在地识别或针对青少年可能知识薄弱的护理领域。这些关键项目包括教育、考虑到关系、生殖、未来计划和自我管理技能的发展准备。用于衡量准备情况的现有工具主要集中在教育和自我护理需求评估作为其关键项目。目前，在爱尔兰或国际上没有专门用于衡量囊性纤维化过渡准备情况的量表。
该研究采用描述性定性设计。
使用半结构化访谈（n=8）收集数据，并使用主题方法进行分析。
研究结果确定了该工具的潜在益处，并支持了在开发和将其引入囊性纤维化服务之前需要到位的资源。
过渡准备量表与囊性纤维化服务具有重要相关性，强调在实施之前建立必要资源的重要性。这些资源被确定为更多的工作人员、专用的私人空间以及工作人员培训和教育。
将过渡准备量表完全整合到实践中需要大量资源。研究结果表明，多学科合作和患者参与对于规划和缓解患有囊性纤维化的青少年的过渡过程至关重要。
