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本文引用的文献

1
Validation of the Spanish version of the Cancer Symptom Scale in Hispanic cancer patients.西班牙文版癌症症状量表在西班牙裔癌症患者中的验证
Int J Nurs Pract. 2018 Dec;24(6):e12700. doi: 10.1111/ijn.12700. Epub 2018 Oct 4.
2
Functional Outcomes Following Radical Cystectomy in Women with Bladder Cancer: A Systematic Review.膀胱癌女性根治性膀胱切除术后的功能结局:系统评价。
Eur Urol Focus. 2017 Feb;3(1):136-143. doi: 10.1016/j.euf.2016.05.005. Epub 2016 Jun 1.
3
Differences in fatigue severity in a sample of adult cancer patients.成人癌症患者样本中疲劳严重程度的差异。
J Clin Nurs. 2018 Sep;27(17-18):3345-3354. doi: 10.1111/jocn.13840. Epub 2017 Aug 8.
4
[Correlation between social support and quality of life in patients with breast cancer at different periods of treatment].
Zhonghua Zhong Liu Za Zhi. 2017 Mar 23;39(3):202-206. doi: 10.3760/cma.j.issn.0253-3766.2017.03.009.
5
Online support groups for women with breast cancer.乳腺癌女性的在线支持小组。
Cochrane Database Syst Rev. 2017 Mar 10;3(3):CD011652. doi: 10.1002/14651858.CD011652.pub2.
6
Concurrent chemoradiotherapy degrades the quality of life of patients with stage II nasopharyngeal carcinoma as compared to radiotherapy.与放射治疗相比,同步放化疗会降低II期鼻咽癌患者的生活质量。
Oncotarget. 2017 Feb 21;8(8):14029-14038. doi: 10.18632/oncotarget.14932.
7
The Dyadic Effects of Family Cohesion and Communication on Health-Related Quality of Life: The Moderating Role of Sex.家庭凝聚力与沟通对健康相关生活质量的二元效应:性别的调节作用。
Cancer Nurs. 2018 Mar/Apr;41(2):156-165. doi: 10.1097/NCC.0000000000000468.
8
Quality of life after cancer-How the extent of impairment is influenced by patient characteristics.癌症后的生活质量——患者特征如何影响损伤程度。
BMC Cancer. 2016 Oct 10;16(1):787. doi: 10.1186/s12885-016-2822-z.
9
Evaluation of gender-specific aspects in quality-of-life in patients with larynx carcinoma.喉癌患者生活质量中性别特异性方面的评估。
Acta Otolaryngol. 2016 Dec;136(12):1201-1205. doi: 10.1080/00016489.2016.1211319. Epub 2016 Aug 9.
10
To be young, Black, and living with breast cancer: a systematic review of health-related quality of life in young Black breast cancer survivors.身为年轻黑人且患有乳腺癌:对年轻黑人乳腺癌幸存者健康相关生活质量的系统综述。
Breast Cancer Res Treat. 2016 Nov;160(1):1-15. doi: 10.1007/s10549-016-3963-0. Epub 2016 Sep 6.

波多黎各人在癌症治疗期间的健康相关生活质量;一项试点研究。

The Health related Quality of Life of Puerto Ricans during Cancer Treatments; A Pilot Study.

作者信息

Gonzalez Velda J, McMillan Susan, Pedro Elsa, Tirado-Gomez Maribel, Saligan Leorey N

机构信息

Postdoctoral Fellow, College of Nursing, University of South Florida, Tampa, FL.

Distinguished Professor and Thompson Professor of Oncology Nursing and Quality of Life at the University of South Florida College of Nursing, FL.

出版信息

P R Health Sci J. 2018 Mar;37(1):46-51.

PMID:29547684
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5863575/
Abstract

OBJECTIVE

To examine the health related quality of life (HRQOL) experienced by 79 Puerto Rican adults during cancer treatments.

METHODS

This study used a descriptive, cross-sectional design. Participants completed a demographics form and the Functional Assessment of Cancer Therapy-General QOL questionnaire (FACT-G). Descriptive statistics were generated.

RESULTS

Participants were ages 28-78; most of the participants had breast (38.0%), prostate (14.0%) and cervical and ovarian cancers (10.1%) treated with chemotherapy (45.6%). The participants had a mean total score on the FACT-G of 75.2 (SD = 18.9). As a group, the functional well-being was the most affected (mean 17.2, SD 6.8), and the Social/Familial was the least affected (mean 20.7, SD 6.0).

CONCLUSION

Cancer is the leading cause of death in the island of Puerto Rico. Female Puerto Rican cancer patients in this study sample had increased risk for experiencing worse: overall HRQOL, physical well-being and emotional well-being compared to males. Given that the Hispanic oncology population does not always report symptoms, risking under-assessment and under management, this suggests there may be a greater need for HRQOL surveillance for this population.

摘要

目的

研究79名波多黎各成年人在癌症治疗期间的健康相关生活质量(HRQOL)。

方法

本研究采用描述性横断面设计。参与者填写了一份人口统计学表格,并完成了癌症治疗功能评估通用生活质量问卷(FACT-G)。生成了描述性统计数据。

结果

参与者年龄在28 - 78岁之间;大多数参与者患有乳腺癌(38.0%)、前列腺癌(14.0%)以及子宫颈癌和卵巢癌(10.1%),接受化疗的比例为45.6%。参与者在FACT-G上的平均总分是75.2(标准差 = 18.9)。作为一个群体,功能幸福感受影响最大(平均17.2,标准差6.8),社会/家庭幸福感受影响最小(平均20.7,标准差6.0)。

结论

癌症是波多黎各岛的主要死因。在本研究样本中,波多黎各女性癌症患者与男性相比,在总体HRQOL、身体幸福感和情绪幸福感方面经历更差情况的风险增加。鉴于西班牙裔肿瘤患者群体并不总是报告症状,存在评估不足和管理不足的风险,这表明可能更需要对该群体进行HRQOL监测。