Four Seasons Compassion for Life, Flat Rock, North Carolina, USA.
Duke University Medical Center, Durham, North Carolina, USA.
J Pain Symptom Manage. 2018 Jul;56(1):7-14. doi: 10.1016/j.jpainsymman.2018.03.013. Epub 2018 Mar 16.
The impact of telehealth and remote patient monitoring has not been well established in palliative care populations in rural communities.
The objectives of this study were to 1) describe a telehealth palliative care program using the TapCloud remote patient monitoring application and videoconferencing; 2) evaluate the feasibility, usability, and acceptability of a telehealth system in palliative care; and 3) use a quality data assessment collection tool in addition to TapCloud ratings of symptom burden and hospice transitions.
A mixed-methods approach was used to assess feasibility, usability, and acceptability. Quantitative assessments included patient symptom burden and improvement, hospice transitions, and advanced directives. Qualitative semistructured interviews on a subpopulation of telehealth patients, caregivers, and providers were performed to learn about their experiences using TapCloud.
One-hundred one palliative care patients in rural Western North Carolina were enrolled in the program. The mean age of patients enrolled was 72 years, with a majority (60%) being female and a pulmonary diagnosis accounting for the largest percentage of patients (23%). Remote patient monitoring using TapCloud resulted in improved symptom management, and patients in the model had a hospice transition rate of 35%. Patients, caregivers, and providers reported overwhelmingly positive experiences with telehealth with three main advantages: 1) access to clinicians, 2) quick responses, and 3) improved efficiency and quality of care.
This is one of the first articles to describe a telehealth palliative care program and to demonstrate acceptability, feasibility, and usability as well as describe symptom outcomes and hospice transitions.
远程医疗和远程患者监测在农村社区的姑息治疗人群中的影响尚未得到充分证实。
本研究的目的是:1)描述使用 TapCloud 远程患者监测应用程序和视频会议的远程姑息治疗计划;2)评估远程姑息治疗系统的可行性、可用性和可接受性;3)除了 TapCloud 对症状负担和临终关怀转变的评分外,还使用质量数据评估收集工具。
采用混合方法评估可行性、可用性和可接受性。定量评估包括患者症状负担和改善、临终关怀转变和预先指示。对一小部分远程医疗患者、护理人员和提供者进行了半结构化的定性访谈,以了解他们使用 TapCloud 的经验。
在北卡罗来纳州西部的农村地区,有 101 名姑息治疗患者参加了该计划。入组患者的平均年龄为 72 岁,其中大多数(60%)为女性,肺部诊断占患者比例最大(23%)。使用 TapCloud 进行远程患者监测导致症状管理得到改善,模型中的患者临终关怀转变率为 35%。患者、护理人员和提供者报告说,远程医疗的体验非常积极,主要有三个优势:1)获得临床医生的帮助;2)快速响应;3)提高了护理效率和质量。
这是第一篇描述远程姑息治疗计划的文章之一,并展示了可接受性、可行性和可用性,以及描述症状结果和临终关怀转变。