Li Shuo, Lu Guijun, Shen Yongqing, Ye Jianya, Ji Jingmin
Department of nursing, Beijing Tsinghua Changgung Hospital, School of Clinical Medicine, Tsinghua Medicine, Tsinghua University, Beijing, 102218, China.
School of Nursing, Hebei University of Chinese Medicine, Shijiazhuang, 050200, Hebei, China.
BMC Palliat Care. 2025 Apr 4;24(1):94. doi: 10.1186/s12904-025-01732-3.
The palliative Internet-based outpatient service ensures seamless connectivity and equitable patient care; however, there is a lack of research on service quality, as well as the experiences and perceptions of patients' relatives. The aim of this study was to explore the perspectives and experiences of patients' relatives when using the palliative Internet clinic.
A qualitative study involving semi-structured interviews with 13 relatives of terminal cancer patients was conducted, and data were analyzed using content analysis.
Relatives reported that they were capable of caring for the patients at home but experienced confusion and challenges in managing their symptoms and addressing their psychological issues. They expressed hope that Internet clinics would provide timely and effective professional guidance to families, easing caregiving burdens and enhancing the quality of home-based care.
This study highlights the potential of Internet-based palliative care to enhance the quality of home-based caregiving and reduce caregiver burden. In addition, Internet-based consultations as an alternative to face-to-face consultations offers an appropriate option in palliative care settings.
基于互联网的姑息门诊服务确保了无缝连接和公平的患者护理；然而，缺乏对服务质量以及患者亲属的体验和看法的研究。本研究的目的是探讨患者亲属使用姑息互联网诊所时的观点和体验。
进行了一项定性研究，对13名晚期癌症患者的亲属进行了半结构化访谈，并使用内容分析法对数据进行了分析。
亲属报告称，他们有能力在家照顾患者，但在管理患者症状和解决心理问题方面感到困惑并面临挑战。他们希望互联网诊所能为家庭提供及时有效的专业指导，减轻护理负担，提高居家护理质量。
本研究强调了基于互联网的姑息治疗在提高居家护理质量和减轻护理人员负担方面的潜力。此外，基于互联网的咨询作为面对面咨询的替代方式，在姑息治疗环境中提供了一个合适的选择。
