Eunice Kennedy Shriver National Institute of Child Health and Human Development, Maternal and Pediatric Infectious Disease Branch, Bethesda, Maryland 20817, USA.
Booz Allen Hamilton, Inc., McLean, Virginia 22102, USA.
Sci Data. 2018 Mar 20;5:180046. doi: 10.1038/sdata.2018.46.
The benefits of data sharing are well-established and an increasing number of policies require that data be shared upon publication of the main study findings. As data sharing becomes the new norm, there is a heightened need for additional resources to drive efficient data reuse. This article describes the development and implementation of the Data and Specimen Hub (DASH) by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) to promote data sharing from NICHD-funded studies and enable researchers to comply with NIH data sharing policies. DASH's flexible architecture is designed to archive diverse data types and formats from NICHD's broad scientific portfolio in a manner that promotes FAIR data sharing principles. Performance of DASH over two years since launch is promising: the number of available studies and data requests are growing; three manuscripts have been published from data reanalysis, all within two years of access. Critical success factors included NICHD leadership commitment, stakeholder engagement and close coordination between the governance body and technical team.
数据共享的好处已得到充分证实,越来越多的政策要求主要研究结果发表后应共享数据。随着数据共享成为新的规范,需要更多的资源来推动有效的数据再利用。本文介绍了 Eunice Kennedy Shriver 国家儿童健康与人类发育研究所(NICHD)开发和实施数据和标本中心(DASH)的情况,以促进 NICHD 资助研究的数据共享,并使研究人员能够遵守 NIH 数据共享政策。DASH 的灵活架构旨在以促进 FAIR 数据共享原则的方式,从 NICHD 广泛的科学组合中归档各种数据类型和格式。自推出以来两年多来,DASH 的表现很有希望:可用研究和数据请求的数量不断增加;已有三篇基于数据分析的论文发表,均在获得数据两年内发表。关键成功因素包括 NICHD 的领导层承诺、利益相关者的参与以及治理机构和技术团队之间的密切协调。