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本文引用的文献

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Patient's Cognitive Function and Attitudes towards Family Involvement in Cancer Treatment Decision Making: A Patient-Family Caregiver Dyadic Analysis.患者认知功能与对癌症治疗决策中家庭参与的态度:患者-家庭照顾者的双元分析。
Cancer Res Treat. 2018 Jul;50(3):681-690. doi: 10.4143/crt.2017.201. Epub 2017 Jul 4.
2
Cross-cultural application of the Korean version of the EORTC QLQ-ELD14 questionnaire for elderly patients with cancer.欧洲癌症研究与治疗组织老年癌症患者QLQ-ELD14问卷韩文版的跨文化应用
J Geriatr Oncol. 2017 Jul;8(4):271-276. doi: 10.1016/j.jgo.2017.03.001. Epub 2017 Apr 1.
3
What cancer means to the patients and their primary caregivers in the family-accounted Korean context: A dyadic interpretation.在以家庭为单位的韩国背景下,癌症对患者及其主要家庭照料者意味着什么:二元解读。
Psychooncology. 2017 Nov;26(11):1777-1783. doi: 10.1002/pon.4364. Epub 2017 Jan 24.
4
Preferences for and experiences of family involvement in cancer treatment decision-making: patient-caregiver dyads study.患者-照顾者对癌症治疗决策中家庭参与的偏好和体验:患者-照顾者对癌症治疗决策中家庭参与的偏好和体验:患者-照顾者对癌症治疗决策中家庭参与的偏好和体验研究。
Psychooncology. 2013 Nov;22(11):2624-31. doi: 10.1002/pon.3339. Epub 2013 Jul 24.
5
Determinants of the burden and positivity of family caregivers of terminally ill cancer patients in Korea.韩国终末期癌症患者家庭照顾者负担和阳性率的决定因素。
Psychooncology. 2012 Mar;21(3):282-90. doi: 10.1002/pon.1893. Epub 2010 Dec 20.
6
Cultural values and caregiving: the updated sociocultural stress and coping model.文化价值观与照护:更新的社会文化压力与应对模型。
J Gerontol B Psychol Sci Soc Sci. 2010 Jan;65B(1):5-13. doi: 10.1093/geronb/gbp096. Epub 2009 Nov 24.
7
Optimizing patient and family involvement in geriatric home care.优化患者及家属在老年家庭护理中的参与度。
J Healthc Qual. 2009 Mar-Apr;31(2):24-33. doi: 10.1111/j.1945-1474.2009.00016.x.
8
Cultural attitudes and caregiver service use: lessons from focus groups with racially and ethnically diverse family caregivers.文化态度与照护者服务使用:来自与不同种族和族裔家庭照护者进行的焦点小组讨论的经验教训
J Gerontol Soc Work. 2006;47(1-2):133-56. doi: 10.1300/J083v47n01_09.
9
The meaning of family caregiving in Japan and the United States: a qualitative comparative study.日本和美国家庭照护的意义:一项定性比较研究。
J Transcult Nurs. 2006 Jan;17(1):65-73. doi: 10.1177/1043659605281979.
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Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis.家庭照料中压力源、资源及心理结果的种族差异:一项荟萃分析。
Gerontologist. 2005 Feb;45(1):90-106. doi: 10.1093/geront/45.1.90.

当我们谈论照护时我们在谈论什么:以家庭为中心的文化中癌症患者照护中角色的分配。

What We Talk about When We Talk about Caregiving: The Distribution of Roles in Cancer Patient Caregiving in a Family-Oriented Culture.

机构信息

Department of Psychology, The University of Utah Asia Campus, Incheon, Korea.

Department of Family Medicine/Supportive Care Center, Samsung Medical Center, Sungkyunkwan University College of Medicine, Seoul, Korea.

出版信息

Cancer Res Treat. 2019 Jan;51(1):141-149. doi: 10.4143/crt.2017.557. Epub 2018 Mar 21.

DOI:10.4143/crt.2017.557
PMID:29566482
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6333998/
Abstract

PURPOSE

When it comes to cancer care, the psychological well-being of family caregivers has gotten its deserved attention. However, the specific roles that the family caregivers take have not been examined as much. The current study aimed to investigate the distribution of family caregivers' roles, particularly in a family-oriented culture, Korea.

MATERIALS AND METHODS

A sample of 439 participants was recruited from 11 national and regional cancer centers in Korea. The participants who were 60 years old or above went through treatments for their gastric, colorectal, or lung cancer. The individual survey included questions regarding the family type, living arrangement, and the sources of support when it comes to their physical, emotional, financial, and decision-making needs.

RESULTS

The responses from the participants showed that cancer caregiving is shared by multiple family caregivers; the major source of support for elderly cancer patients on diverse domains was their spouse; patients' reliance on their daughter(s) increased for emotional support; and patients' reliance on their son(s) stood out for financial support and decision-making support. Also, the older the patients were, the heavier their reliance was on the adult children, including sons, daughters, and daughters-in-law.

CONCLUSION

Future support programs for elderly cancer patients are suggested to involve multiple family caregivers to encourage effective and efficient intervention. Also, the limitations of the current study and the suggestions for future research are discussed.

摘要

目的

在癌症护理方面,家庭照顾者的心理健康已经得到了应有的关注。然而,家庭照顾者所扮演的具体角色并没有得到太多的研究。本研究旨在探讨家庭照顾者角色的分布情况,特别是在以家庭为导向的文化中,韩国。

材料和方法

从韩国 11 个国家和地区癌症中心招募了 439 名参与者。这些参与者年龄在 60 岁及以上,正在接受胃癌、结直肠癌或肺癌治疗。个人调查包括有关家庭类型、居住安排以及在身体、情感、经济和决策需求方面的支持来源的问题。

结果

参与者的回答表明,癌症护理是由多个家庭照顾者共同承担的;配偶是老年癌症患者在多个领域的主要支持来源;患者对女儿的情感支持依赖增加;患者对儿子的经济支持和决策支持依赖突出;而且,患者年龄越大,对成年子女(包括儿子、女儿和儿媳)的依赖程度就越高。

结论

建议为老年癌症患者制定未来的支持计划,以鼓励有效的干预措施,并涉及多个家庭照顾者。此外,还讨论了当前研究的局限性和未来研究的建议。