Dunwoodie Stirton Fred, Heslop Pauline
The Learning Disabilities Mortality Review (LeDeR) Programme, School for Policy Studies, University of Bristol, Bristol, UK.
J Appl Res Intellect Disabil. 2018 Sep;31(5):659-668. doi: 10.1111/jar.12448. Epub 2018 Mar 24.
Mortality studies can help reduce health inequalities by informing public policy through a better understanding of causes of death and comorbidities. Mortality studies often rely on Medical Certificates of Cause of Death (MCCD) for data.
A systematic review was undertaken to identify the extent and nature of issues in recording causes of death for people with intellectual disability on MCCD.
Fifteen of the 25 articles included in the literature review raised concerns about the accuracy of MCCD in identifying the cause(s) of death of people with intellectual disability. The most frequent issues were the under-reporting of intellectual disability on MCCD, and listing intellectual disability or an associated condition as an underlying cause of death.
Concerns about the accuracy and reliability of MCCD for people with intellectual disability raise questions about mortality data based on MCCD. Clear guidance is required from WHO for those completing MCCD for people with intellectual disability.
死亡率研究可以通过更好地了解死因和合并症来为公共政策提供信息，从而有助于减少健康不平等现象。死亡率研究通常依靠死亡医学证明书（MCCD）获取数据。
进行了一项系统综述，以确定在MCCD上记录智力残疾者死因时问题的范围和性质。
文献综述纳入的25篇文章中有15篇对MCCD在确定智力残疾者死因方面的准确性表示担忧。最常见的问题是MCCD上智力残疾报告不足，以及将智力残疾或相关病症列为根本死因。
对MCCD用于智力残疾者的准确性和可靠性的担忧引发了对基于MCCD的死亡率数据的质疑。世界卫生组织需要为为智力残疾者填写MCCD的人员提供明确指导。
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