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Behavioral disorder in people with an intellectual disability and epilepsy: A report of the Intellectual Disability Task Force of the Neuropsychiatric Commission of ILAE.智力残疾和癫痫患者的行为障碍:国际抗癫痫联盟神经精神委员会智力残疾特别工作组的报告
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A White Paper on the medical and social needs of people with epilepsy and intellectual disability: the Task Force on Intellectual Disabilities and Epilepsy of the International League Against Epilepsy.《癫痫和智力残疾人群的医学和社会需求白皮书:国际抗癫痫联盟智力残疾和癫痫特别工作组》。
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Rapid switching from levetiracetam to brivaracetam in pharmaco-resistant epilepsy in people with and without intellectual disabilities: a naturalistic case control study.在伴有和不伴有智力障碍的药物难治性癫痫患者中,从左乙拉西坦快速转换为布瓦西坦:一项自然病例对照研究。
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本文引用的文献

1
Managing anti-epileptic drug treatment in adult patients with intellectual disability: a serious conundrum.管理成年智障患者的抗癫痫药物治疗:一个严峻的难题。
Eur J Neurol. 2016 Jul;23(7):1152-7. doi: 10.1111/ene.13016. Epub 2016 Apr 23.
2
Prevalence of epilepsy among people with intellectual disabilities: A systematic review.智力残疾人群中癫痫的患病率:一项系统综述。
Seizure. 2015 Jul;29:46-62. doi: 10.1016/j.seizure.2015.03.016. Epub 2015 Mar 30.
3
Cognitive adverse events of topiramate in patients with epilepsy and intellectual disability.托吡酯在癫痫和智力残疾患者中的认知不良事件。
Epilepsy Behav. 2015 Apr;45:261-4. doi: 10.1016/j.yebeh.2014.12.043. Epub 2015 Apr 2.
4
A White Paper on the medical and social needs of people with epilepsy and intellectual disability: the Task Force on Intellectual Disabilities and Epilepsy of the International League Against Epilepsy.《癫痫和智力残疾人群的医学和社会需求白皮书:国际抗癫痫联盟智力残疾和癫痫特别工作组》。
Epilepsia. 2014 Dec;55(12):1902-6. doi: 10.1111/epi.12848. Epub 2014 Nov 6.
5
Long-term seizure and behavioral outcomes after corpus callosotomy.
Epilepsy Behav. 2014 Dec;41:23-9. doi: 10.1016/j.yebeh.2014.08.130. Epub 2014 Sep 29.
6
Transition into adulthood: tuberous sclerosis complex, Sturge-Weber syndrome, and Rasmussen encephalitis.向成年期过渡:结节性硬化症、斯-韦综合征和拉斯穆森脑炎。
Epilepsia. 2014 Aug;55 Suppl 3:29-33. doi: 10.1111/epi.12722.
7
Transition issues for children with diffuse cortical malformations, multifocal postnatal lesions, (infectious and traumatic) and Lennox-Gastaut and similar syndromes.患有弥漫性皮质发育畸形、多灶性产后病变(感染性和创伤性)以及Lennox-Gastaut综合征和类似综合征的儿童的过渡问题。
Epilepsia. 2014 Aug;55 Suppl 3:24-8. doi: 10.1111/epi.12704.
8
Epilepsy prevalence and socioeconomic deprivation in England.英格兰的癫痫患病率与社会经济剥夺状况
Epilepsia. 2014 Oct;55(10):1634-41. doi: 10.1111/epi.12763. Epub 2014 Sep 2.
9
What happens to children with epilepsy when they become adults? Some facts and opinions.癫痫患儿成年后会怎样?一些事实与观点。
Pediatr Neurol. 2014 Jul;51(1):17-23. doi: 10.1016/j.pediatrneurol.2014.02.020. Epub 2014 Mar 4.
10
Caregiver burden in epilepsy: determinants and impact.癫痫患者照料者的负担:决定因素及影响
Epilepsy Res Treat. 2014;2014:808421. doi: 10.1155/2014/808421. Epub 2014 Apr 8.

智力残疾和癫痫患者的行为障碍:国际抗癫痫联盟神经精神委员会智力残疾特别工作组的报告

Behavioral disorder in people with an intellectual disability and epilepsy: A report of the Intellectual Disability Task Force of the Neuropsychiatric Commission of ILAE.

作者信息

Kerr Mike, Linehan Christine, Brandt Christian, Kanemoto Kousuke, Kawasaki Jun, Sugai Kenji, Tadokoro Yukari, Villanueva Vicente, Wilmshurst Jo, Wilson Sarah

机构信息

Institute of Psychological Medicine and Clinical Neuroscience Cardiff University Cardiff United Kingdom.

UCD Centre for Disability Studies University College Dublin Dublin Ireland.

出版信息

Epilepsia Open. 2016 Sep 15;1(3-4):102-111. doi: 10.1002/epi4.12018. eCollection 2016 Dec.

DOI:10.1002/epi4.12018
PMID:29588933
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5719831/
Abstract

The management and needs of people with intellectual disability (ID) and epilepsy are well evidenced; less so, the comorbidity of behavioral disorder in this population. "Behavioral disorder" is defined as behaviors that are difficult or disruptive, including stereotypes, difficult or disruptive behavior, aggressive behavior toward other people, behaviors that lead to injury to self or others, and destruction of property. These have an important link to emotional disturbance. This report, produced by the Intellectual Disability Task Force of the Neuropsychiatric Commission of the ILAE, aims to provide a brief review of some key areas of concern regarding behavioral disorder among this population and proposes a range of research and clinical practice recommendations generated by task force members. The areas covered in this report were identified by experts in the field as being of specific relevance to the broad epilepsy community when considering behavioral disorder in persons with epilepsy and ID; they are not intended to be exhaustive. The practice recommendations are based on the authors' review of the limited research in this field combined with their experience supporting this population. These points are not graded but can be seen as expert opinion guiding future research and clinical practice.

摘要

智力残疾(ID)和癫痫患者的管理及需求已有充分证据;而该人群中行为障碍的合并症情况则证据较少。“行为障碍”被定义为难以控制或具有干扰性的行为,包括刻板行为、困难或具有干扰性的行为、对他人的攻击行为、导致自我或他人受伤的行为以及破坏财产的行为。这些行为与情绪障碍有着重要联系。本报告由国际抗癫痫联盟神经精神委员会智力残疾特别工作组撰写,旨在简要回顾该人群中与行为障碍相关的一些关键关注领域,并提出特别工作组成员给出的一系列研究和临床实践建议。本报告涵盖的领域是该领域专家认定的,在考虑癫痫和智力残疾患者的行为障碍时,与广大癫痫群体具有特定相关性;它们并非详尽无遗。实践建议基于作者对该领域有限研究的回顾以及他们为这一人群提供支持的经验。这些要点未进行分级,但可被视为指导未来研究和临床实践的专家意见。