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智力残疾和癫痫患者的行为障碍:国际抗癫痫联盟神经精神委员会智力残疾特别工作组的报告

Behavioral disorder in people with an intellectual disability and epilepsy: A report of the Intellectual Disability Task Force of the Neuropsychiatric Commission of ILAE.

作者信息

Kerr Mike, Linehan Christine, Brandt Christian, Kanemoto Kousuke, Kawasaki Jun, Sugai Kenji, Tadokoro Yukari, Villanueva Vicente, Wilmshurst Jo, Wilson Sarah

机构信息

Institute of Psychological Medicine and Clinical Neuroscience Cardiff University Cardiff United Kingdom.

UCD Centre for Disability Studies University College Dublin Dublin Ireland.

出版信息

Epilepsia Open. 2016 Sep 15;1(3-4):102-111. doi: 10.1002/epi4.12018. eCollection 2016 Dec.

Abstract

The management and needs of people with intellectual disability (ID) and epilepsy are well evidenced; less so, the comorbidity of behavioral disorder in this population. "Behavioral disorder" is defined as behaviors that are difficult or disruptive, including stereotypes, difficult or disruptive behavior, aggressive behavior toward other people, behaviors that lead to injury to self or others, and destruction of property. These have an important link to emotional disturbance. This report, produced by the Intellectual Disability Task Force of the Neuropsychiatric Commission of the ILAE, aims to provide a brief review of some key areas of concern regarding behavioral disorder among this population and proposes a range of research and clinical practice recommendations generated by task force members. The areas covered in this report were identified by experts in the field as being of specific relevance to the broad epilepsy community when considering behavioral disorder in persons with epilepsy and ID; they are not intended to be exhaustive. The practice recommendations are based on the authors' review of the limited research in this field combined with their experience supporting this population. These points are not graded but can be seen as expert opinion guiding future research and clinical practice.

摘要

智力残疾(ID)和癫痫患者的管理及需求已有充分证据;而该人群中行为障碍的合并症情况则证据较少。“行为障碍”被定义为难以控制或具有干扰性的行为,包括刻板行为、困难或具有干扰性的行为、对他人的攻击行为、导致自我或他人受伤的行为以及破坏财产的行为。这些行为与情绪障碍有着重要联系。本报告由国际抗癫痫联盟神经精神委员会智力残疾特别工作组撰写,旨在简要回顾该人群中与行为障碍相关的一些关键关注领域,并提出特别工作组成员给出的一系列研究和临床实践建议。本报告涵盖的领域是该领域专家认定的,在考虑癫痫和智力残疾患者的行为障碍时,与广大癫痫群体具有特定相关性;它们并非详尽无遗。实践建议基于作者对该领域有限研究的回顾以及他们为这一人群提供支持的经验。这些要点未进行分级,但可被视为指导未来研究和临床实践的专家意见。

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