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The Relationship of Parental Health Literacy to Health Outcomes of Children with Medical Complexity.父母健康素养与患有复杂疾病儿童健康结果的关系。
J Pediatr Nurs. 2021 Sep-Oct;60:65-70. doi: 10.1016/j.pedn.2021.02.014. Epub 2021 Feb 20.
4
Generic Health Literacy Measurements for Adults: A Scoping Review.成人通用健康素养测量工具:综述。
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Evaluation of the efficiency of the web-based epilepsy education program (WEEP) for youth with epilepsy and parents: A randomized controlled trial.基于网络的癫痫教育计划(WEEP)对青少年癫痫患者及其家长的效果评估:一项随机对照试验。
Epilepsy Behav. 2020 Oct;111:107142. doi: 10.1016/j.yebeh.2020.107142. Epub 2020 Jul 21.
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Scand J Public Health. 2021 Jun;49(4):471-478. doi: 10.1177/1403494820926428. Epub 2020 Jun 7.
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家长健康素养问卷(HLQ-Parent)。对癫痫患儿家长进行的改编及效度测试。

The Parent Health Literacy Questionnaire (HLQ-Parent). Adaptation and validity testing with parents of children with epilepsy.

作者信息

Wahl Astrid K, Hermansen Åsmund, Tschamper Merete B, Osborne Richard H, Helseth Sølvi, Jacobsen Rita, Larsen Marie H

机构信息

Faculty of Medicine, Institute of Health and Society, Department of Interdisciplinary Health Sciences, University of Oslo, Norway.

Faculty of Social Sciences, Oslo Metropolitan University, Norway.

出版信息

Scand J Public Health. 2024 Feb;52(1):39-47. doi: 10.1177/14034948221123436. Epub 2022 Oct 10.

DOI:10.1177/14034948221123436
PMID:36214166
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10845827/
Abstract

AIMS

The aim of this study was to adapt the Health Literacy Questionnaire (HLQ) in English and Norwegian for use with parents.

METHODS

The research group evaluated all HLQ items and, where relevant, modified them to refocus the attribution of care to that of a child by a parent. Five cognitive interviews with parents were undertaken to gain a detailed depiction of the meanings and processes they used to respond to the HLQ items. Assessment of the psychometric properties of the revised HLQ was undertaken using data from a cross-sectional survey of 254 parents of children with epilepsy. Analysis included internal consistency (Cronbach's alpha) and confirmatory factor analysis (CFA).

RESULTS

Some 22 out of 44 items and the names of three domains were modified (e.g. attribution changed from 'me' to 'my child'). Cognitive interviews indicated that parents interpreted the HLQ-Parent items in the way intended. All but three factor loadings were high to acceptable. All nine HLQ scales showed satisfactory to good internal consistency (Cronbach's alpha 0.70 to 0.87). When fitting one-factor CFA models, correlated residuals were required for four scales to generate an acceptable fit. One scale, '8. Ability to find good health information', required inclusion of two correlated residuals to generate an acceptable CFA model fit, indicating that further work on this scale is warranted.

CONCLUSIONS

The results from both the adaptation process and the CFA analysis supported the relevance, understanding and theoretical structure of the instrument in a parental context.

摘要

目的

本研究旨在将英文和挪威语版的健康素养问卷(HLQ)改编,以供家长使用。

方法

研究小组评估了HLQ的所有项目,并在相关情况下进行修改,将护理的归因重新聚焦于家长对孩子的护理。对家长进行了五次认知访谈,以详细描述他们对HLQ项目的理解以及作答过程。利用对254名癫痫患儿家长的横断面调查数据,对修订后的HLQ的心理测量特性进行评估。分析包括内部一致性(克朗巴哈系数)和验证性因素分析(CFA)。

结果

44个项目中的约22个以及三个领域的名称进行了修改(例如,归因从“我”改为“我的孩子”)。认知访谈表明,家长按照预期方式理解HLQ-家长版项目。除三个因素负荷外,其他所有因素负荷均较高或可接受。所有九个HLQ量表均显示出令人满意至良好的内部一致性(克朗巴哈系数为0.70至0.87)。在拟合单因素CFA模型时,四个量表需要相关残差才能产生可接受的拟合度。一个量表“8. 找到优质健康信息的能力”,需要纳入两个相关残差才能产生可接受的CFA模型拟合度,这表明该量表需要进一步研究。

结论

改编过程和CFA分析的结果均支持该工具在家长背景下的相关性、可理解性和理论结构。