智力残疾者自我报告与代理报告对健康相关因素的比较。
Comparisons of self and proxy report on health-related factors in people with intellectual disability.
作者信息
Scott Haleigh M, Havercamp Susan M
机构信息
The University of Illinois at Chicago, Chicago, IL, USA.
The Ohio State University, Columbus, OH, USA.
出版信息
J Appl Res Intellect Disabil. 2018 Sep;31(5):927-936. doi: 10.1111/jar.12452. Epub 2018 Apr 2.
BACKGROUND
The intellectual disability field has learned about the lives of people with intellectual disabilities (ID), largely from the perspective of their family and caregivers. Information from caregivers has been critical to scientific advancement, especially when caregivers are engaged on behalf of individuals with significant language impairment. On the other hand, the perspective of individuals with ID themselves is critical for internal subjective content such as thoughts and feelings.
METHODS
Participants were 90 adults with ID and a proxy of their choosing.
RESULTS
Overall, self and caregiver report were significantly related for subjective health but varied for physical activity, social support and stress.
CONCLUSIONS
These findings add to the growing literature establishing the importance of considering the self-report of adults with ID, particularity when the subject matter focuses on internal thoughts or feelings. Clinical considerations for the use of self and proxy report are discussed.
背景
智力残疾领域对智力残疾者生活的了解，很大程度上是从其家人和照料者的视角出发的。照料者提供的信息对科学进步至关重要，尤其是当照料者代表有严重语言障碍的个体参与其中时。另一方面，智力残疾者自身的视角对于诸如思想和情感等内在主观内容而言至关重要。
方法
研究参与者为90名成年智力残疾者及其选择的一名代理人。
结果
总体而言，自我报告与照料者报告在主观健康方面显著相关，但在身体活动、社会支持和压力方面存在差异。
结论
这些发现进一步丰富了相关文献，证实了考虑成年智力残疾者自我报告的重要性，特别是当主题聚焦于内在思想或情感时。文中还讨论了使用自我报告和代理人报告的临床考量。
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