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传染的复杂性:加拿大囊性纤维化患儿和青少年的社会隔离经历。

The complexities of contagion: The experience of social isolation among children and youth living with cystic fibrosis in Canada.

作者信息

Moola Fiona

机构信息

School of Public Health, University of Toronto, Ontario, Canada.

出版信息

J Child Health Care. 2018 Dec;22(4):631-645. doi: 10.1177/1367493518767784. Epub 2018 Apr 3.

DOI:10.1177/1367493518767784
PMID:29614879
Abstract

While cross-respiratory infection guidelines reduce the risk of infection, this may have deleterious impacts on the socialization skills of young people living with cystic fibrosis (CF). The purpose of this study was to explore the experience of social isolation among young Canadians with CF, as well as how they navigate these complex contamination restrictions. The thematic analytic qualitative research tradition was adopted and social theories of risk provided theoretical grounding. The youth described a pressing sense of social isolation in their everyday lives. Although most of the youth 'obeyed' the cross-contamination guidelines, some demonstrated a more carefree attitude. Social media was employed across the group as a tool to reduce isolation. In accordance with the sociology of risk, youth with CF demonstrate sophisticated decision-making abilities, navigating exceedingly difficult choices to preserve an always-precarious future. While necessary, cross-contamination guidelines might further marginalize an already isolated group of children and youth.

摘要

虽然交叉呼吸道感染指南降低了感染风险,但这可能会对患有囊性纤维化(CF)的年轻人的社交技能产生有害影响。本研究的目的是探讨加拿大患有CF的年轻人的社会隔离经历,以及他们如何应对这些复杂的感染限制。本研究采用了主题分析定性研究传统,并以风险社会理论为理论基础。这些年轻人描述了他们日常生活中迫切的社会隔离感。尽管大多数年轻人“遵守”交叉感染指南,但有些人表现出更无忧无虑的态度。整个群体都将社交媒体作为减少隔离的工具。根据风险社会学,患有CF的年轻人表现出复杂的决策能力,他们要在极其困难的选择中做出抉择,以维护一个始终岌岌可危的未来。虽然交叉感染指南是必要的,但它们可能会进一步边缘化一个已经处于隔离状态的儿童和青年群体。

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