Department of Behavioral, Social, and Health Education Sciences, Rollins School of Public Health, Emory University, Atlanta, Georgia, USA.
Department of Pediatrics, University of Florida Health, Gainesville, Florida, USA.
J Palliat Med. 2022 Aug;25(8):1186-1196. doi: 10.1089/jpm.2021.0426. Epub 2022 Mar 23.
To conduct a social network analysis (SNA) of patient-volunteer networks and assess the impact of patient characteristics on network measures. Volunteers play a critical role in providing peer support to adolescent and young adult (AYA) palliative care patients. Streetlight at UF Health is a peer support palliative care program for hospitalized AYAs that aims at forming positive peer relationships through volunteer visits, events, and a virtual online health community. Data were collected on patient characteristics, hospitalizations, average length of stays (LOS), and volunteer visitation records. Egocentric SNAs were conducted on each patient to calculate network outcomes. Study participants were AYA patients ( = 69), enrolled in the US-based Streetlight program at UF Health Shands Hospital. The LOS was significantly associated with network size ( = 0.583; 95% confidence interval; CI [0.463 to 0.702]). Autoimmune patients had smaller network sizes when controlling for LOS. Total hospital admissions predicted - 0.172 ([- 0.263 to - 0.080]) lower average repeat visits. Higher average repeat visits were predicted for patients who had cancer ( = 0.246 [0.046 to 0.447]) and awaiting organ transplantation ( = 0.370 [0.082 to 0.658]). Although cystic fibrosis patients received more visits ( = 0.364 [0.003 to 0.724]) compared with other illness populations, the network density was lower ( = - 0.580 [1.01 to - 0.155]). Cancer patients had networks with a higher diversity in volunteer repeat visits ( = 0.714 [0.312 to 0.920]). Significant relationships between patient characteristics and network outcomes highlight the differences in social support service delivery among diverse populations. These analyses can be utilized in practice to guide program delivery for high-need patients.
进行患者-志愿者网络的社会网络分析(SNA),并评估患者特征对网络测量的影响。志愿者在为青少年和年轻成人(AYA)姑息治疗患者提供同伴支持方面发挥着关键作用。UF Health 的 Streetlight 是一个针对住院 AYA 的同伴支持姑息治疗计划,旨在通过志愿者访问、活动和虚拟在线健康社区建立积极的同伴关系。收集了患者特征、住院、平均住院时间(LOS)和志愿者访问记录的数据。对每位患者进行了以自我为中心的 SNA,以计算网络结果。研究参与者为参加美国 UF Health Shands 医院 Streetlight 计划的 AYA 患者(n=69)。 LOS 与网络规模显著相关(r=0.583;95%置信区间;CI [0.463 至 0.702])。控制 LOS 后,自身免疫性患者的网络规模较小。总住院入院预测平均重复访问次数减少-0.172([-0.263 至-0.080])。患有癌症的患者(r=0.246 [0.046 至 0.447])和等待器官移植的患者(r=0.370 [0.082 至 0.658])的平均重复访问次数更高。尽管囊性纤维化患者的访问次数(r=0.364 [0.003 至 0.724])高于其他疾病患者,但网络密度较低(r=-0.580 [1.01 至-0.155])。癌症患者的志愿者重复访问网络多样性更高(r=0.714 [0.312 至 0.920])。患者特征与网络结果之间的显著关系突出了不同人群中社会支持服务提供的差异。这些分析可用于实践中,为高需求患者提供指导方案。