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本文引用的文献

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Egocentric network characteristics of persons with Type 1 diabetes and their relationships to perceived social support and well-being.1型糖尿病患者的自我中心网络特征及其与感知到的社会支持和幸福感的关系。
Health Psychol Behav Med. 2021 Jul 19;9(1):662-680. doi: 10.1080/21642850.2021.1951272. eCollection 2021.
2
Satisfaction with Social Support Received from Social Relationships in Cases of Chronic Pain: The Influence of Personal Network Characteristics in Terms of Structure, Composition and Functional Content.慢性疼痛患者从社会关系中获得的社会支持的满意度:个人网络特征(结构、组成和功能内容)的影响。
Int J Environ Res Public Health. 2020 Apr 15;17(8):2706. doi: 10.3390/ijerph17082706.
3
Risk factors associated with prolonged hospital length-of-stay: 18-year retrospective study of hospitalizations in a tertiary healthcare center in Mexico.与住院时间延长相关的风险因素:墨西哥一家三级保健中心 18 年住院回顾性研究。
PLoS One. 2018 Nov 8;13(11):e0207203. doi: 10.1371/journal.pone.0207203. eCollection 2018.
4
Characteristics of the ineffective social support network: integrative review.无效社会支持网络的特征:综合综述
Rev Gaucha Enferm. 2018 Oct 22;39:e20170303. doi: 10.1590/1983-1447.2018.20170303.
5
Effects of Social Support Network Size on Mortality Risk: Considerations by Diabetes Status.社会支持网络规模对死亡风险的影响:基于糖尿病状况的考量
Diabetes Spectr. 2018 May;31(2):189-192. doi: 10.2337/ds17-0056.
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The complexities of contagion: The experience of social isolation among children and youth living with cystic fibrosis in Canada.传染的复杂性:加拿大囊性纤维化患儿和青少年的社会隔离经历。
J Child Health Care. 2018 Dec;22(4):631-645. doi: 10.1177/1367493518767784. Epub 2018 Apr 3.
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Adolescents' experiences of living with sickle cell disease: An integrative narrative review of the literature.青少年患镰状细胞病的体验:文献综合叙事性综述。
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Applying Social Network Analysis to Identify the Social Support Needs of Adolescent and Young Adult Cancer Patients and Survivors.应用社会网络分析识别青少年和青年癌症患者和幸存者的社会支持需求。
J Adolesc Young Adult Oncol. 2018 Apr;7(2):181-186. doi: 10.1089/jayao.2017.0058. Epub 2017 Nov 6.
9
Illness, normality and identity: the experience of heart transplant as a young adult.疾病、常态与身份认同:一位年轻成年人心脏移植的经历
Disabil Rehabil. 2017 Sep;39(19):1976-1982. doi: 10.1080/09638288.2016.1213896. Epub 2016 Sep 24.
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Social well-being among adolescents and young adults with cancer: A systematic review.癌症青少年和青年的社会福祉:一项系统综述。
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基于志愿者的社会支持结构和青少年成人姑息治疗同伴支持计划的项目曝光结果。

Volunteer-Based Social Support Structures and Program Exposure Outcomes in an Adolescent Young Adult Palliative Care Peer Support Program.

机构信息

Department of Behavioral, Social, and Health Education Sciences, Rollins School of Public Health, Emory University, Atlanta, Georgia, USA.

Department of Pediatrics, University of Florida Health, Gainesville, Florida, USA.

出版信息

J Palliat Med. 2022 Aug;25(8):1186-1196. doi: 10.1089/jpm.2021.0426. Epub 2022 Mar 23.

DOI:10.1089/jpm.2021.0426
PMID:35333622
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10027341/
Abstract

To conduct a social network analysis (SNA) of patient-volunteer networks and assess the impact of patient characteristics on network measures. Volunteers play a critical role in providing peer support to adolescent and young adult (AYA) palliative care patients. Streetlight at UF Health is a peer support palliative care program for hospitalized AYAs that aims at forming positive peer relationships through volunteer visits, events, and a virtual online health community. Data were collected on patient characteristics, hospitalizations, average length of stays (LOS), and volunteer visitation records. Egocentric SNAs were conducted on each patient to calculate network outcomes. Study participants were AYA patients ( = 69), enrolled in the US-based Streetlight program at UF Health Shands Hospital. The LOS was significantly associated with network size ( = 0.583; 95% confidence interval; CI [0.463 to 0.702]). Autoimmune patients had smaller network sizes when controlling for LOS. Total hospital admissions predicted - 0.172 ([- 0.263 to - 0.080]) lower average repeat visits. Higher average repeat visits were predicted for patients who had cancer ( = 0.246 [0.046 to 0.447]) and awaiting organ transplantation ( = 0.370 [0.082 to 0.658]). Although cystic fibrosis patients received more visits ( = 0.364 [0.003 to 0.724]) compared with other illness populations, the network density was lower ( = - 0.580 [1.01 to - 0.155]). Cancer patients had networks with a higher diversity in volunteer repeat visits ( = 0.714 [0.312 to 0.920]). Significant relationships between patient characteristics and network outcomes highlight the differences in social support service delivery among diverse populations. These analyses can be utilized in practice to guide program delivery for high-need patients.

摘要

进行患者-志愿者网络的社会网络分析(SNA),并评估患者特征对网络测量的影响。志愿者在为青少年和年轻成人(AYA)姑息治疗患者提供同伴支持方面发挥着关键作用。UF Health 的 Streetlight 是一个针对住院 AYA 的同伴支持姑息治疗计划,旨在通过志愿者访问、活动和虚拟在线健康社区建立积极的同伴关系。收集了患者特征、住院、平均住院时间(LOS)和志愿者访问记录的数据。对每位患者进行了以自我为中心的 SNA,以计算网络结果。研究参与者为参加美国 UF Health Shands 医院 Streetlight 计划的 AYA 患者(n=69)。 LOS 与网络规模显著相关(r=0.583;95%置信区间;CI [0.463 至 0.702])。控制 LOS 后,自身免疫性患者的网络规模较小。总住院入院预测平均重复访问次数减少-0.172([-0.263 至-0.080])。患有癌症的患者(r=0.246 [0.046 至 0.447])和等待器官移植的患者(r=0.370 [0.082 至 0.658])的平均重复访问次数更高。尽管囊性纤维化患者的访问次数(r=0.364 [0.003 至 0.724])高于其他疾病患者,但网络密度较低(r=-0.580 [1.01 至-0.155])。癌症患者的志愿者重复访问网络多样性更高(r=0.714 [0.312 至 0.920])。患者特征与网络结果之间的显著关系突出了不同人群中社会支持服务提供的差异。这些分析可用于实践中,为高需求患者提供指导方案。