Balasubramaniyan Subramaniyan, Raghunathan Vaidyanathan, Rajashekhar B, Sathiyasekaran B W C, Nagarajan Roopa
Department of Speech, Language and Hearing Sciences, Chennai, Tamil Nadu, India.
Department of Speech and Hearing, School of Allied Health Sciences, Manipal Academy of Higher Education, Manipal, Karnataka, India.
Indian J Plast Surg. 2017 Sep-Dec;50(3):295-301. doi: 10.4103/ijps.IJPS_174_17.
A community-based rehabilitation programme, Sri Ramachandra University-Transforming Faces project, was initiated to provide comprehensive management of communication disorders in individuals with CLP in two districts in Tamil Nadu, India. This community-based programme aims to integrate hospital-based services with the community-based initiatives and to enable long-term care. The programme was initiated in Thiruvannamalai (2005) district and extended to Cuddalore (2011). The aim of this study was to identify needs related to speech among children with CLP, enroled in the above community-based programme in two districts in Tamil Nadu, India.
This was a cross-sectional study.
Ten camps were conducted specifically for speech assessments in two districts over a 12-month period. Two hundred and seventeen individuals (116 males and 101 females) >3 years of age reported to the camps.
Investigator (SLP) collected data using the speech protocol of the cleft and craniofacial centre. Descriptive analysis and profiling of speech samples were carried out and reported using universal protocol for reporting speech outcomes. Fleiss' Kappa test was used to estimate inter-rater reliability.
In this study, inter-rater reliability between three evaluators revealed good agreement for the parameters: resonance, articulatory errors and voice disorder. About 83.8% ( = 151/180) of the participants demonstrated errors in articulation and 69% ( = 124/180) exhibited abnormal resonance. Velopharyngeal port functioning assessment was completed for 55/124 participants.
This study allows us to capture a "snapshot" of children with CLP, living in a specific geographical location, and assist in planning intervention programmes.
印度泰米尔纳德邦的一个基于社区的康复项目——斯里兰卡拉马钱德拉大学“改变面容”项目启动，旨在为该邦两个地区唇腭裂患者的沟通障碍提供综合管理。这个基于社区的项目旨在将医院服务与社区倡议相结合，实现长期护理。该项目于2005年在蒂鲁瓦纳马莱地区启动，并于2011年扩展至库达洛尔地区。本研究的目的是确定在印度泰米尔纳德邦上述两个地区参与该社区项目的唇腭裂儿童的言语相关需求。
这是一项横断面研究。
在12个月内，在两个地区专门开展了10次言语评估营活动。217名3岁以上的个体（116名男性和101名女性）前往这些营地报到。
调查者（言语语言病理学家）使用唇腭裂与颅面中心的言语协议收集数据。对言语样本进行描述性分析和剖析，并按照报告言语结果的通用协议进行报告。使用弗莱iss卡方检验来评估评分者间的信度。
在本研究中，三位评估者之间在共鸣、发音错误和嗓音障碍等参数方面的评分者间信度显示出良好的一致性。约83.8%（=151/180）的参与者存在发音错误，69%（=124/180）存在异常共鸣。对124名参与者中的55名完成了腭咽口功能评估。
本研究使我们能够获取生活在特定地理位置的唇腭裂儿童的“快照”，并有助于规划干预项目。
