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2
Speech diagnosis and intervention in children with a repaired cleft palate: A qualitative study of Flemish private community speech-language pathologists' practices.腭裂修复术后儿童的言语诊断与干预:对佛兰芒语区私立社区言语治疗师实践的定性研究
Int J Speech Lang Pathol. 2022 Feb;24(1):53-66. doi: 10.1080/17549507.2021.1946153. Epub 2021 Jul 6.
3
Management of noncleft velopharyngeal insufficiency.非腭裂性咽闭合不全的治疗。
Curr Opin Otolaryngol Head Neck Surg. 2021 Aug 1;29(4):283-288. doi: 10.1097/MOO.0000000000000735.
4
Parameters For Evaluation and Treatment of Patients With Cleft Lip/Palate or Other Craniofacial Differences.唇腭裂或其他颅面差异患者的评估与治疗参数
Cleft Palate Craniofac J. 2018 Jan;55(1):137-156. doi: 10.1177/1055665617739564.
5
The Geographic Availability of Certified Cleft Care in the United States: A National Geospatial Analysis of 1-Hour Access to Care.美国认证的唇腭裂护理的地理可及性:对 1 小时内获得护理的全国地理空间分析。
J Oral Maxillofac Surg. 2021 Aug;79(8):1733-1742. doi: 10.1016/j.joms.2021.02.043. Epub 2021 Mar 8.
6
Telemedicine in International Cleft Care: A Systematic Review.国际唇腭裂照护中的远程医疗:系统评价。
Cleft Palate Craniofac J. 2021 Dec;58(12):1547-1555. doi: 10.1177/1055665621989140. Epub 2021 Feb 4.
7
Opinions of Speech-Language Pathologists Regarding Speech Management for Children With Cleft Lip and Palate.言语治疗师对唇腭裂患儿言语管理的看法。
Cleft Palate Craniofac J. 2020 Jan;57(1):55-64. doi: 10.1177/1055665619857000. Epub 2019 Jun 20.
8
Identification and Management of Middle Ear Disorders in a Rural Cleft Care Program: A Telemedicine Approach.农村腭裂护理项目中耳部疾病的识别与管理:一种远程医疗方法。
Am J Audiol. 2018 Nov 19;27(3S):455-461. doi: 10.1044/2018_AJA-IMIA3-18-0015.
9
Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment.为印度南部农村唇腭裂儿童规划基于社区的言语干预:需求评估。
Indian J Plast Surg. 2017 Sep-Dec;50(3):295-301. doi: 10.4103/ijps.IJPS_174_17.
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Closing the Loop on Centralization of Cleft Care in the United Kingdom.英国唇腭裂护理集中化的闭环管理
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关怀在哪里?确定农村地区对腭裂儿童的 SLP 病例量和治疗决策的影响。

Where is the Care? Identifying the Impact of Rurality on SLP Caseloads and Treatment Decisions for Children with Cleft Palate.

机构信息

Department of Human Services, University of Virginia, Charlottesville, VA, USA.

Division of Communication Disorders, University of Wyoming, Laramie, WY, USA.

出版信息

Cleft Palate Craniofac J. 2024 Dec;61(12):1969-1980. doi: 10.1177/10556656231189940. Epub 2023 Jul 24.

DOI:10.1177/10556656231189940
PMID:37488965
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10805969/
Abstract

Challenges providing cleft/craniofacial care in rural communities are often reported, leading to disparities in resources available to clinicians. The purpose of this study was to identify the impact of rurality on caseloads and practice patterns of speech-language pathologists (SLPs) regarding speech and velopharyngeal function for children with cleft lip and/or palate (CL/P). A national, survey of US-based SLPs (N = 359 respondents) investigated resources, comfort level, caseloads, and practice patterns for children with CL/P. Sub-county classifications that delineated levels of rurality were utilized. Descriptive statistics and chi-square analyses were conducted to determine the impact of population density on assessment and referral decisions. Nearly 83% of SLPs reported providing care for a child with CL/P and 41.4% of these SLPs reported five or more children with CL/P on caseload throughout their career. There were no significant differences in rurality of practice setting and the likelihood of treating a child with CL/P. Significant differences were present between rural, town, suburban, and metropolitan-based SLPs regarding available resources ( = 0.035). SLPs in rural settings reported feeling uncomfortable treating children with CL/P compared to those in metropolitan settings ( = 0.02). Distance to the cleft/craniofacial team and comfort levels impacted referral decisions. Most SLPs report having children with CL/P on caseload regardless of practice location. Rurality impacted assessment and referral decisions, especially surrounding access to resources and comfort levels engaging in team care. Findings have implications for developing support systems and reducing barriers for rural SLPs working with children born with CL/P.

摘要

在农村社区提供唇腭裂/颅面护理面临的挑战经常被报道,导致临床医生可获得的资源存在差异。本研究的目的是确定农村环境对言语语言病理学家(SLP)针对唇裂和/或腭裂(CL/P)儿童的语音和腭咽功能的患者量和实践模式的影响。对美国的 SLP 进行了一项全国性调查(N = 359 名受访者),调查了他们针对 CL/P 儿童的资源、舒适度、患者量和实践模式。利用了对农村程度进行细分的次级县分类。进行了描述性统计和卡方分析,以确定人口密度对评估和转诊决策的影响。近 83%的 SLP 报告为 CL/P 儿童提供护理,其中 41.4%的 SLP 报告在整个职业生涯中有 5 个或更多 CL/P 儿童的患者量。实践环境的农村程度和治疗 CL/P 儿童的可能性之间没有显著差异。农村、城镇、郊区和大都市基础的 SLP 之间在可用资源方面存在显著差异( = 0.035)。与大都市环境相比,农村环境中的 SLP 报告在治疗 CL/P 儿童方面感到不自在( = 0.02)。与 cleft/craniofacial 团队的距离和舒适度水平会影响转诊决策。大多数 SLP 报告称,无论其实践地点如何,都有 CL/P 儿童在患者量中。农村程度影响评估和转诊决策,特别是在资源获取和参与团队护理的舒适度方面。研究结果对为与 CL/P 出生的儿童一起工作的农村 SLP 发展支持系统和减少障碍具有重要意义。