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关怀在哪里?确定农村地区对腭裂儿童的 SLP 病例量和治疗决策的影响。

Where is the Care? Identifying the Impact of Rurality on SLP Caseloads and Treatment Decisions for Children with Cleft Palate.

机构信息

Department of Human Services, University of Virginia, Charlottesville, VA, USA.

Division of Communication Disorders, University of Wyoming, Laramie, WY, USA.

出版信息

Cleft Palate Craniofac J. 2024 Dec;61(12):1969-1980. doi: 10.1177/10556656231189940. Epub 2023 Jul 24.

Abstract

Challenges providing cleft/craniofacial care in rural communities are often reported, leading to disparities in resources available to clinicians. The purpose of this study was to identify the impact of rurality on caseloads and practice patterns of speech-language pathologists (SLPs) regarding speech and velopharyngeal function for children with cleft lip and/or palate (CL/P). A national, survey of US-based SLPs (N = 359 respondents) investigated resources, comfort level, caseloads, and practice patterns for children with CL/P. Sub-county classifications that delineated levels of rurality were utilized. Descriptive statistics and chi-square analyses were conducted to determine the impact of population density on assessment and referral decisions. Nearly 83% of SLPs reported providing care for a child with CL/P and 41.4% of these SLPs reported five or more children with CL/P on caseload throughout their career. There were no significant differences in rurality of practice setting and the likelihood of treating a child with CL/P. Significant differences were present between rural, town, suburban, and metropolitan-based SLPs regarding available resources ( = 0.035). SLPs in rural settings reported feeling uncomfortable treating children with CL/P compared to those in metropolitan settings ( = 0.02). Distance to the cleft/craniofacial team and comfort levels impacted referral decisions. Most SLPs report having children with CL/P on caseload regardless of practice location. Rurality impacted assessment and referral decisions, especially surrounding access to resources and comfort levels engaging in team care. Findings have implications for developing support systems and reducing barriers for rural SLPs working with children born with CL/P.

摘要

在农村社区提供唇腭裂/颅面护理面临的挑战经常被报道,导致临床医生可获得的资源存在差异。本研究的目的是确定农村环境对言语语言病理学家(SLP)针对唇裂和/或腭裂(CL/P)儿童的语音和腭咽功能的患者量和实践模式的影响。对美国的 SLP 进行了一项全国性调查(N = 359 名受访者),调查了他们针对 CL/P 儿童的资源、舒适度、患者量和实践模式。利用了对农村程度进行细分的次级县分类。进行了描述性统计和卡方分析,以确定人口密度对评估和转诊决策的影响。近 83%的 SLP 报告为 CL/P 儿童提供护理,其中 41.4%的 SLP 报告在整个职业生涯中有 5 个或更多 CL/P 儿童的患者量。实践环境的农村程度和治疗 CL/P 儿童的可能性之间没有显著差异。农村、城镇、郊区和大都市基础的 SLP 之间在可用资源方面存在显著差异( = 0.035)。与大都市环境相比,农村环境中的 SLP 报告在治疗 CL/P 儿童方面感到不自在( = 0.02)。与 cleft/craniofacial 团队的距离和舒适度水平会影响转诊决策。大多数 SLP 报告称,无论其实践地点如何,都有 CL/P 儿童在患者量中。农村程度影响评估和转诊决策,特别是在资源获取和参与团队护理的舒适度方面。研究结果对为与 CL/P 出生的儿童一起工作的农村 SLP 发展支持系统和减少障碍具有重要意义。

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