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本文引用的文献

1
"She Told Them, Oh That Bitch Got AIDS": Experiences of Multilevel HIV/AIDS-Related Stigma Among African American Women Living with HIV/AIDS in the South.“她告诉他们,哦,那个婊子得了艾滋病”:美国南部感染艾滋病毒/艾滋病的非裔美国女性在多层次与艾滋病毒/艾滋病相关的耻辱感方面的经历。
AIDS Patient Care STDS. 2016 Jul;30(7):349-56. doi: 10.1089/apc.2016.0026.
2
Race-based medical mistrust, medication beliefs and HIV treatment adherence: test of a mediation model in people living with HIV/AIDS.基于种族的医疗不信任、用药观念与艾滋病病毒治疗依从性:对艾滋病病毒/艾滋病感染者中介模型的检验
J Behav Med. 2016 Dec;39(6):1056-1064. doi: 10.1007/s10865-016-9767-1. Epub 2016 Jul 9.
3
Life Lessons from Women with HIV: Mutuality, Self-Awareness, and Self-Efficacy.感染艾滋病毒女性的人生经验:相互性、自我认知与自我效能感
AIDS Patient Care STDS. 2016 Jun;30(6):261-73. doi: 10.1089/apc.2016.0031. Epub 2016 May 23.
4
Medical mistrust among social network members may contribute to antiretroviral treatment nonadherence in African Americans living with HIV.社交网络成员之间的医疗不信任可能导致非裔美国艾滋病毒感染者抗逆转录病毒治疗依从性差。
Soc Sci Med. 2016 Sep;164:133-140. doi: 10.1016/j.socscimed.2016.03.028. Epub 2016 Mar 19.
5
Substance use, mental illness, and familial conflict non-negotiation among HIV-positive African-Americans: latent class regression and a new syndemic framework.艾滋病毒呈阳性的非裔美国人中的物质使用、精神疾病和家庭冲突无协商:潜在类别回归与新的综合征框架
J Behav Med. 2016 Feb;39(1):1-12. doi: 10.1007/s10865-015-9670-1. Epub 2015 Aug 22.
6
Monocytes as regulators of inflammation and HIV-related comorbidities during cART.单核细胞作为 cART 期间炎症和与 HIV 相关合并症的调节剂。
J Immunol Res. 2014;2014:569819. doi: 10.1155/2014/569819. Epub 2014 Jun 12.
7
'Triply cursed': racism, homophobia and HIV-related stigma are barriers to regular HIV testing, treatment adherence and disclosure among young Black gay men.“三重诅咒”:种族主义、恐同症以及与艾滋病病毒相关的污名化是年轻黑人男同性恋者定期进行艾滋病病毒检测、坚持治疗和公开病情的障碍。
Cult Health Sex. 2014 Jun;16(6):710-22. doi: 10.1080/13691058.2014.905706. Epub 2014 May 2.
8
Does perceived racial discrimination predict changes in psychological distress and substance use over time? An examination among Black emerging adults.感知到的种族歧视是否能预测心理困扰和物质使用随时间的变化?对黑人青年成年人的一项调查。
Dev Psychol. 2014 Jul;50(7):1910-8. doi: 10.1037/a0036438. Epub 2014 Apr 14.
9
Medication adherence in HIV-positive patients with diabetes or hypertension: a focus group study.HIV 阳性合并糖尿病或高血压患者的用药依从性:一项焦点小组研究。
BMC Health Serv Res. 2013 Nov 25;13:488. doi: 10.1186/1472-6963-13-488.
10
Substance abuse treatment in persons with HIV/AIDS: challenges in managing triple diagnosis.艾滋病毒/艾滋病患者的药物滥用治疗:应对三重诊断的挑战。
Behav Med. 2014;40(2):43-52. doi: 10.1080/08964289.2013.866540.

THANKS 项目:从社区视角审视非裔美国女性获得艾滋病护理的障碍和促进因素:艾滋病相关护理。

Project THANKS: Examining HIV/AIDS-Related Barriers and Facilitators to Care in African American Women: A Community Perspective.

机构信息

1 Department of Public Health and Community Medicine, Tufts University School of Medicine , Boston, Massachusetts.

2 Department of Nutrition and Food Studies, Montclair State University , Montclair, New Jersey.

出版信息

AIDS Patient Care STDS. 2018 Apr;32(4):119-128. doi: 10.1089/apc.2017.0215.

DOI:10.1089/apc.2017.0215
PMID:29630851
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5972771/
Abstract

Project THANKS, (Turning HIV/AIDS into Knowledge for Sisters), is an evidence-based intervention that utilizes a community-based participatory and empowerment building approach for African American female substance abusers living with HIV and other chronic diseases. This qualitative study sought to gain insight from women living with HIV on how to improve Project THANKS. African American women living with substance abuse disorders, HIV, and other comorbidities were recruited from three community based health centers in New Jersey (N = 31). Ninety minute focus group sessions were implemented in each health center. The focus group sessions were designed to understand the perceived factors influencing the participants' ability to self-manage their health conditions and challenges they are currently facing regarding their diagnoses. The barriers and suggestions presented by participants included addressing stigmatization, managing mental health symptoms, improving physician-patient trust, accessing health education, educating community members, and proper nutrition. In addition, an engaged and trusting relationship with their healthcare provider and having positive sources of support were cited as motivators to adhering to their HIV treatment regimen. Participants living with HIV/AIDS also expressed more concern with difficulty treating their comorbidities than participants with only HIV/AIDS. Receiving input from African American women living with HIV related comorbidities was essential in improving the intervention to include a behavioral and primary health approach. Future programmatic interventions of Project THANKS will include a targeted focus on addressing mental health needs in women by offering meditation services and mental health referrals. In addition, Project THANKS will incorporate activities to improve communication with physicians, families, and media outlets to empower women to take an active role in their primary and social support needs.

摘要

THANKS 项目(将艾滋病毒/艾滋病转变为姐妹知识)是一项基于证据的干预措施,采用基于社区的参与和赋权建设方法,针对感染艾滋病毒和患有其他慢性疾病的非裔美国女性药物滥用者。这项定性研究旨在深入了解感染艾滋病毒的女性如何改进 THANKS 项目。从新泽西州的三个社区卫生中心招募了患有药物滥用障碍、艾滋病毒和其他合并症的非裔美国女性(N=31)。在每个卫生中心都实施了 90 分钟的焦点小组会议。焦点小组会议旨在了解影响参与者自我管理健康状况的感知因素,以及他们目前在诊断方面面临的挑战。参与者提出的障碍和建议包括解决污名化问题、管理心理健康症状、改善医患信任、获得健康教育、教育社区成员和适当营养。此外,与医疗保健提供者建立积极和信任的关系,并拥有积极的支持来源,被认为是坚持艾滋病毒治疗方案的动机。患有艾滋病毒/艾滋病的参与者还表示,他们更关注治疗合并症的困难,而不是只患有艾滋病毒/艾滋病的参与者。从感染艾滋病毒相关合并症的非裔美国女性那里获得意见对于改进干预措施以包括行为和初级保健方法至关重要。 THANKS 项目的未来方案干预措施将包括有针对性地关注解决女性的心理健康需求,提供冥想服务和心理健康转介。此外, THANKS 项目将纳入改善与医生、家庭和媒体沟通的活动,以使妇女能够积极参与其初级和社会支持需求。