Amutah-Onukagha Ndidiamaka, Ibeziako Nathanaelle, Tibbitt Celsea, Louis LeAnn, Amarnath Aishwarya
J Healthc Sci Humanit. 2021 Fall;11(1):204-224.
Low literacy levels in Black women with HIV (WWH) have been shown to amplify pre-existing health disparities and sequelae of non-adherence to health-related guidance. Wisdom Matters is a community-based participatory research program with an aim of improving health literacy in populations of Black WWH and assessing the existing knowledge, attitudes, and beliefs surrounding HIV care delivery and psychosocial barriers in these populations. Our research was conducted in Boston, MA, where 17 Black WWH were recruited to complete a 6-week curriculum designed to provide a thorough and cohesive path to empowerment, both individually and collectively, pertaining to living with HIV. Data collection was augmented through pre- and posttest data as well as qualitative data collected via focus groups. Content and narrative analyses of these qualitative data demonstrate individual and group improvement in the areas of nutrition, medication adherence, stress management, and disclosure of HIV status after participation in the Wisdom Matters program. The study demonstrates the feasibility and acceptability of health literacy interventions based within community settings and addresses gaps in literacy that healthcare workers can prioritize in the education of their patients.
研究表明,感染艾滋病毒的黑人女性(WWH)识字水平较低,这加剧了她们原有的健康差距以及不遵守健康相关指导所带来的后果。“智慧至关重要”是一项基于社区的参与性研究项目,旨在提高感染艾滋病毒的黑人女性群体的健康素养,并评估这些人群中围绕艾滋病毒护理服务以及心理社会障碍的现有知识、态度和信念。我们的研究在马萨诸塞州波士顿进行,招募了17名感染艾滋病毒的黑人女性,让她们完成一个为期6周的课程,该课程旨在为她们提供一条全面且连贯的个人和集体赋权之路,以应对感染艾滋病毒后的生活。通过前后测数据以及通过焦点小组收集的定性数据来增加数据收集。对这些定性数据的内容和叙事分析表明,参与“智慧至关重要”项目后,在营养、药物依从性、压力管理以及艾滋病毒状况披露等方面,个人和群体都有所改善。该研究证明了基于社区环境的健康素养干预措施的可行性和可接受性,并解决了医疗工作者在患者教育中可以优先考虑的识字差距问题。