School of Education, Froebel College, University of Roehampton, Roehampton Lane, London, SW15 5PJ, UK.
Department of Psychology, Kingston University London, London, UK.
J Autism Dev Disord. 2018 Sep;48(9):3256-3259. doi: 10.1007/s10803-018-3578-x.
Williams syndrome (WS) is a rare neurodevelopmental disorder associated with physical health problems, limitations in cognitive abilities and increased risk of mental health difficulties. This profile of complex needs may make it challenging to support children with WS in schools. Surprisingly, in the current international move for inclusion, limited research exists on the educational provision and academic achievements of children with WS, including the non-existing literature on their voices and the perspectives of key stakeholders. This letter calls for additional research on the risk and protective factors associated with the educational outcomes of these children, the perspectives of the children themselves and the development of the evidence-base about the effectiveness of education intervention programs.
威廉姆斯综合征（WS）是一种罕见的神经发育障碍，与身体健康问题、认知能力受限以及心理健康问题风险增加有关。这种复杂需求的特征可能使得在学校中支持 WS 患儿具有挑战性。令人惊讶的是，在当前国际融合运动中，针对 WS 患儿的教育提供和学业成就的研究有限，包括他们的声音和主要利益相关者观点的文献也不存在。这封信呼吁对与这些儿童的教育成果相关的风险和保护因素、儿童自身的观点以及关于教育干预计划效果的证据基础的发展进行更多研究。
