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用于庞贝病患者的移动应用及其可能的临床应用。

A mobile app for patients with Pompe disease and its possible clinical applications.

机构信息

Department of Clinical and Experimental Medicine, University of Pisa, via Roma 67, 56126 Pisa, Italy.

Associazione Italiana Glicogenosi - ONLUS, Via Roma 2/G, 20090 Assago (Milan), Italy.

出版信息

Neuromuscul Disord. 2018 Jun;28(6):471-475. doi: 10.1016/j.nmd.2018.03.005. Epub 2018 Mar 12.

DOI:10.1016/j.nmd.2018.03.005
PMID:29655528
Abstract

In recent years, the potential of smart technology to provide innovative solutions for disease management has raised high expectations for patients' and healthcare professionals' community. We developed a mobile app, called AIGkit, specifically designed for adult patients with Pompe disease, with the aim to help them manage the burden of illness-related factors, and also to provide clinicians with continuous tracking of each patient in real-time and ambient conditions of everyday life. We present the AIGkit as an innovative approach exploiting cutting-edge technology to improve quality of care and research into neuromuscular disorders.

摘要

近年来,智能技术在疾病管理方面提供创新解决方案的潜力,为患者和医疗专业人员群体带来了很高的期望。我们开发了一款名为 AIGkit 的移动应用程序,专门为患有庞贝病的成年患者设计,旨在帮助他们管理与疾病相关因素的负担,同时也为临床医生提供实时和日常环境下对每个患者的持续跟踪。我们将 AIGkit 视为一种利用尖端技术改善神经肌肉疾病护理和研究的创新方法。

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