探讨青少年癌症幸存者经历的心理困扰，这些幸存者报告需要心理支持。
Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support.
机构信息
Clinical Psychology in Healthcare, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Pediatric Oncology, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
出版信息
PLoS One. 2018 Apr 17;13(4):e0195899. doi: 10.1371/journal.pone.0195899. eCollection 2018.
OBJECTIVE
In this qualitative study, we aimed to provide an in-depth exploration of cancer-related psychological distress experienced by young survivors of cancer during adolescence reporting a need for psychological support.
METHODS
Two individual interviews were held with ten young survivors of cancer diagnosed in adolescence. The interviews were audio-recorded and transcribed verbatim. Analysis followed the guidelines for inductive qualitative manifest content analysis.
RESULTS
The survivors described distress experienced during and after the end of treatment. Five categories comprising 14 subcategories were generated. The categories included: A tough treatment, Marked and hindered, Not feeling good enough, Struggling with the fragility of life, and finally, An ongoing battle with emotions.
CONCLUSION
Young survivors of adolescent cancer reporting a need for psychological support described feeling physically, socially, and mentally marked by the cancer experience. They struggled with powerlessness, insecurity, social disconnection, loneliness, and feelings of being unimportant and a failure, and had difficulties understanding and managing their experiences. These concerns should be addressed in psychological treatments for the population irrespective of which approach or model is used to understand survivors' difficulties. A trans-diagnostic approach targeting processes that underpin different manifestations of distress may be effective.
目的
在这项定性研究中，我们旨在深入探讨青少年癌症幸存者在报告需要心理支持时所经历的与癌症相关的心理困扰。
方法
对 10 名在青少年时期被诊断出患有癌症的年轻癌症幸存者进行了两次单独的访谈。访谈进行了录音，并逐字记录下来。分析遵循归纳定性显式内容分析的准则。
结果
幸存者描述了在治疗期间和治疗结束后所经历的困扰。生成了包含 14 个子类别的五个类别。这些类别包括：艰难的治疗、明显的和受阻的、感觉不够好、与生命的脆弱作斗争，以及最终与情绪作斗争。
结论
报告需要心理支持的青少年癌症幸存者描述了自己被癌症经历在身体、社交和心理上打上了烙印。他们与无力感、不安全感、社交脱节、孤独感以及不重要和失败的感觉作斗争，并且难以理解和管理自己的经历。无论采用何种方法或模式来理解幸存者的困难，都应该在心理治疗中解决这一群体的这些问题。针对不同困扰表现形式的潜在过程的跨诊断方法可能是有效的。
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