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本文引用的文献

1
Support from healthcare services during transition to adulthood - Experiences of young adult survivors of pediatric cancer.向成年期过渡期间医疗服务的支持——儿科癌症青年幸存者的经历
Eur J Oncol Nurs. 2016 Apr;21:105-12. doi: 10.1016/j.ejon.2016.02.008. Epub 2016 Feb 23.
2
Early Adolescent Peer Foundations of Late Adolescent and Young Adult Psychological Adjustment.青少年早期同伴关系对青少年晚期及青年期心理调适的基础作用
J Res Adolesc. 2015 Dec 1;25(4):685-699. doi: 10.1111/jora.12162. Epub 2014 Aug 20.
3
Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study.青少年期被诊断为癌症的患者健康相关生活质量及焦虑和抑郁症状的发展:一项10年随访研究。
Psychooncology. 2016 May;25(5):582-9. doi: 10.1002/pon.3965. Epub 2015 Sep 10.
4
Children and adolescents coping with cancer: self- and parent reports of coping and anxiety/depression.应对癌症的儿童和青少年:应对方式及焦虑/抑郁的自我报告与家长报告
Health Psychol. 2014 Aug;33(8):853-61. doi: 10.1037/hea0000083.
5
Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden.青少年癌症确诊10年后的负面与正面影响:瑞典一项基于访谈的纵向研究
Psychooncology. 2014 Nov;23(11):1229-35. doi: 10.1002/pon.3549. Epub 2014 Apr 15.
6
Posttraumatic stress and psychological growth in children with cancer: has the traumatic impact of cancer been overestimated?癌症患儿的创伤后应激和心理成长:癌症的创伤影响是否被高估了?
J Clin Oncol. 2014 Mar 1;32(7):641-6. doi: 10.1200/JCO.2013.49.8212. Epub 2014 Jan 21.
7
Growing up with cancer: accommodating the effects of cancer into young people's social lives.与癌症一同成长:将癌症的影响融入年轻人的社交生活
J Pediatr Oncol Nurs. 2013 Nov-Dec;30(6):311-9. doi: 10.1177/1043454213513839. Epub 2013 Dec 10.
8
Adolescents' and young adults' experiences of childhood cancer: descriptions of daily life 5 years after diagnosis.青少年和年轻人的儿童癌症经历:诊断后 5 年的日常生活描述。
Cancer Nurs. 2013 Sep-Oct;36(5):400-7. doi: 10.1097/NCC.0b013e31829fd80e.
9
Developing and evaluating complex interventions: the new Medical Research Council guidance.制定和评估复杂干预措施:医学研究理事会新指南
Int J Nurs Stud. 2013 May;50(5):587-92. doi: 10.1016/j.ijnurstu.2012.09.010. Epub 2012 Nov 15.
10
Coping with chronic illness in childhood and adolescence.应对儿童和青少年时期的慢性疾病。
Annu Rev Clin Psychol. 2012;8:455-80. doi: 10.1146/annurev-clinpsy-032511-143108. Epub 2011 Dec 20.

探讨青少年癌症幸存者经历的心理困扰,这些幸存者报告需要心理支持。

Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support.

机构信息

Clinical Psychology in Healthcare, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.

Pediatric Oncology, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.

出版信息

PLoS One. 2018 Apr 17;13(4):e0195899. doi: 10.1371/journal.pone.0195899. eCollection 2018.

DOI:10.1371/journal.pone.0195899
PMID:29664926
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5903650/
Abstract

OBJECTIVE

In this qualitative study, we aimed to provide an in-depth exploration of cancer-related psychological distress experienced by young survivors of cancer during adolescence reporting a need for psychological support.

METHODS

Two individual interviews were held with ten young survivors of cancer diagnosed in adolescence. The interviews were audio-recorded and transcribed verbatim. Analysis followed the guidelines for inductive qualitative manifest content analysis.

RESULTS

The survivors described distress experienced during and after the end of treatment. Five categories comprising 14 subcategories were generated. The categories included: A tough treatment, Marked and hindered, Not feeling good enough, Struggling with the fragility of life, and finally, An ongoing battle with emotions.

CONCLUSION

Young survivors of adolescent cancer reporting a need for psychological support described feeling physically, socially, and mentally marked by the cancer experience. They struggled with powerlessness, insecurity, social disconnection, loneliness, and feelings of being unimportant and a failure, and had difficulties understanding and managing their experiences. These concerns should be addressed in psychological treatments for the population irrespective of which approach or model is used to understand survivors' difficulties. A trans-diagnostic approach targeting processes that underpin different manifestations of distress may be effective.

摘要

目的

在这项定性研究中,我们旨在深入探讨青少年癌症幸存者在报告需要心理支持时所经历的与癌症相关的心理困扰。

方法

对 10 名在青少年时期被诊断出患有癌症的年轻癌症幸存者进行了两次单独的访谈。访谈进行了录音,并逐字记录下来。分析遵循归纳定性显式内容分析的准则。

结果

幸存者描述了在治疗期间和治疗结束后所经历的困扰。生成了包含 14 个子类别的五个类别。这些类别包括:艰难的治疗、明显的和受阻的、感觉不够好、与生命的脆弱作斗争,以及最终与情绪作斗争。

结论

报告需要心理支持的青少年癌症幸存者描述了自己被癌症经历在身体、社交和心理上打上了烙印。他们与无力感、不安全感、社交脱节、孤独感以及不重要和失败的感觉作斗争,并且难以理解和管理自己的经历。无论采用何种方法或模式来理解幸存者的困难,都应该在心理治疗中解决这一群体的这些问题。针对不同困扰表现形式的潜在过程的跨诊断方法可能是有效的。