儿童期癌症治疗后青少年和年轻成人的求助行为和对互联网心理支持的态度：瑞典一项调查及嵌入式定性访谈研究方案

Help-seeking behaviour and attitudes towards internet-administered psychological support among adolescent and young adults previously treated for cancer during childhood: protocol for a survey and embedded qualitative interview study in Sweden.

机构信息

Clinical Psychology in Healthcare, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden

Child and Adolescent Psychiatry, Region Vasternorrland, Sundsvall, Sweden.

出版信息

BMJ Open. 2021 Apr 8;11(4):e041350. doi: 10.1136/bmjopen-2020-041350.

DOI:10.1136/bmjopen-2020-041350

PMID:34155002

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8039225/

Abstract

INTRODUCTION

A subgroup of adolescent and young adult childhood cancer survivors (AYACCS) are at increased risk of psychological distress. Despite this, AYACCS experience difficulties accessing psychological support. E-mental health (e-MH) may offer a solution to reduce this treatment gap. However, research examining e-MH for AYACCS has experienced difficulties with recruitment, retention and adherence. Such difficulties may relate to: (1) help-seeking behaviour and/or (2) e-MH acceptability. The overall study aims are to: (1) examine potential associations between health service use factors, informed by Andersen's behavioural model of health services use, and help-seeking behaviour; (2) examine attitudes towards e-MH interventions; and (3) explore perceived need for mental health support; past experience of receiving mental health support; preferences for support; and barriers and facilitators to help-seeking.

METHODS AND ANALYSIS

An online and paper-based cross-sectional self-report survey (98 items) and embedded qualitative interview study across Sweden, with a target sample size of n=365. Participants are aged 16-39 years, diagnosed with cancer when 0-18 years and have completed successful cancer treatment. The survey examines sociodemographic and clinical characteristics, actual help-seeking behaviour, attitudes towards e-MH, stigma of mental illness, mental health literacy, social support and current symptoms of depression, anxiety, and stress. Survey respondents with past and/or current experience of mental health difficulties are invited into the qualitative interview study to explore: (1) perceived need for mental health support; (2) past experience of receiving mental health support; (3) preferences for support; and (4) barriers and facilitators to help-seeking. Potential associations between health service use factors and help-seeking behaviour are examined using univariable and multivariable logistic regressions. Qualitative interviews are analysed using content analysis.

ETHICS AND DISSEMINATION

Ethical approval has been obtained from the Swedish Ethical Review Authority (Dnr: 2020-06271). Results will be disseminated in scientific publications and academic conference presentations.

TRIAL REGISTRATION NUMBER

ISRCTN70570236.

摘要

简介

一组青少年和年轻成年期癌症幸存者（AYACCS）亚组存在心理困扰的风险增加。尽管如此，AYACCS 在获得心理支持方面仍存在困难。电子心理健康（e-MH）可能是减少这种治疗差距的一种解决方案。然而，针对 AYACCS 的 e-MH 研究在招募、保留和坚持方面遇到了困难。这种困难可能与：（1）寻求帮助的行为和/或（2）e-MH 的可接受性有关。总体研究目标是：（1）根据安德森健康服务使用行为模型，检查健康服务使用因素与寻求帮助行为之间的潜在关联；（2）检查对 e-MH 干预措施的态度；（3）探索对心理健康支持的感知需求；过去接受心理健康支持的经验；对支持的偏好；以及寻求帮助的障碍和促进因素。

方法和分析

一项在瑞典进行的在线和纸质横断面自我报告调查（98 项）和嵌入式定性访谈研究，目标样本量为 n=365。参与者年龄在 16-39 岁之间，在 0-18 岁时被诊断出患有癌症，并且已经成功完成癌症治疗。该调查检查了社会人口统计学和临床特征、实际寻求帮助的行为、对 e-MH 的态度、精神疾病耻辱感、心理健康素养、社会支持以及当前抑郁、焦虑和压力的症状。有过去和/或当前心理健康困难经历的调查受访者被邀请参加定性访谈研究，以探讨：（1）对心理健康支持的需求；（2）过去接受心理健康支持的经验；（3）对支持的偏好；（4）寻求帮助的障碍和促进因素。使用单变量和多变量逻辑回归检查健康服务使用因素与寻求帮助行为之间的潜在关联。定性访谈使用内容分析进行分析。