Kim Yoonjung, Lee Kyoung-Sook, Koh Kyung-Nam
Faculty of Red Cross College of Nursing, Chung-Ang University, 84 Heukseok-Ro, Dongjack-Gu, Seoul 156-756, Republic of Korea.
Department of Nursing, Korean Bible University, 32 Dongil-ro 214-gil, Nowon-gu, Seoul, 139-791, Republic of Korea.
Eur J Oncol Nurs. 2018 Oct;36:129-134. doi: 10.1016/j.ejon.2018.08.003. Epub 2018 Sep 22.
Due to improved survival rates of childhood cancer, there has been growing attention to survivors. In addition, experiences of illness in youth, during growth and development, affect the lives of these individuals in numerous ways. With a sample of long-term survivors of childhood cancer, this study investigated their difficult experiences after treatment completion and provided fundamental data for intervention programs that can assist growth.
Data from 15 survivors aged 15-28 years old were collected through face-to-face interviews; analysis used Giorgi's phenomenological method.
The long-term survivors' lives involved a process of struggle to overcome the difficulties. Survivors had physical vestiges of cancer treatments, such as physical strength limitations, appearance changes, and sexual problems. Additionally, they experienced social withdrawal and awkwardness due to adaptation difficulties caused by social life interruption, family issues, social prejudice, and discrimination. These physical and social struggles led to experiences of mental stress and psychological withdrawal, but were followed by rebound.
Long-term survivors of childhood cancer experienced physical, social, and emotional struggles following treatment completion. These results can yield improved understanding of this population, facilitate attention to their challenges, and contribute to their more effective integration into society, helping them live healthy and positive lives.
由于儿童癌症存活率的提高，幸存者受到了越来越多的关注。此外，青少年在成长和发育过程中的患病经历会在许多方面影响这些个体的生活。本研究以儿童癌症长期幸存者为样本，调查了他们在治疗结束后的艰难经历，并为有助于成长的干预项目提供了基础数据。
通过面对面访谈收集了15名年龄在15至28岁之间的幸存者的数据；分析采用了 Giorgi 的现象学方法。
长期幸存者的生活经历了一个克服困难的奋斗过程。幸存者有癌症治疗留下的身体痕迹，如体力受限、外貌变化和性问题。此外，由于社会生活中断、家庭问题、社会偏见和歧视导致的适应困难，他们经历了社交退缩和尴尬。这些身体和社交方面的挣扎导致了精神压力和心理退缩的经历，但随后会出现反弹。
儿童癌症长期幸存者在治疗结束后经历了身体、社交和情感上的挣扎。这些结果有助于更好地了解这一群体，促使人们关注他们所面临的挑战，并有助于他们更有效地融入社会，帮助他们过上健康积极的生活。
