Callahan D
Hastings Center, Briarcliff Manor, NY 10510.
Arch Phys Med Rehabil. 1988 May;69(5):323-8.
There is a developing trend to look to families to provide care and support of those in need of rehabilitation. A widespread assumption is that family care is superior care and, with modest degrees of support, families can provide that care. Yet we may question the ethical limits of the obligation of a family or family member to provide care when the demands are severe. Psychologic and moral problems that confront caregivers are examined. In some cases caregivers must sacrifice their present and future welfare. That the moral claim made upon them may seem a justifiable one in many respects does not mean that it will be endurable; that it is endurable does not mean that it is justifiable. The problem is exacerbated by lack of a supportive culture, one that rewards and honors those who take on heroic duties. Caregivers may be socially isolated. If heroic demands are to be made on family members, a richer moral culture is required, not just the provision of improved social services.
期望家庭为需要康复的人提供照料和支持正成为一种发展趋势。一种普遍的假设是家庭照料是更优质的照料,并且在得到适度支持的情况下,家庭能够提供这种照料。然而,当需求很严峻时,我们可能会质疑家庭或家庭成员提供照料义务的伦理限度。本文探讨了照料者所面临的心理和道德问题。在某些情况下,照料者必须牺牲他们当前和未来的幸福。虽然在很多方面对他们提出的道德要求似乎是合理的,但这并不意味着它是可以忍受的;它是可以忍受的并不意味着它是合理的。缺乏一种支持性文化会使问题更加严重,这种文化应奖励和尊重那些承担艰巨责任的人。照料者可能会在社会上被孤立。如果要对家庭成员提出艰巨的要求,就需要一种更丰富的道德文化,而不仅仅是提供更好的社会服务。