Norlander Anna, Iwarsson Susanne, Jönsson Ann-Cathrin, Lindgren Arne, Månsson Lexell Eva
a Department of Health Sciences , Lund University , Lund , Sweden.
b Department of Clinical Sciences, Neurology , Lund University , Lund , Sweden.
Brain Inj. 2018;32(7):858-866. doi: 10.1080/02699052.2018.1463561. Epub 2018 Apr 19.
To explore conditions influencing long-term participation in social and leisure activities among people who have had a stroke.
This study had a qualitative design, using a grounded theory methodology. Data collection was based on in-depth interviews performed 15 years after a first-ever stroke with 10 persons recruited from a population-based stroke cohort in Sweden. The study also included four family members.
Over time, the stroke meant a changed but gradually normalised life situation. Participation in social and leisure activities was influenced by several transacting personal and contextual conditions changing with time and ageing. Central conditions that emerged from the analysis included personal characteristics, having social and supportive networks, being dependent on others, having access to valued activities and contexts, being motivated to participate, and perceiving sufficient capacity to participate.
Long-term participation after stroke is possible despite impairments, but is influenced by a range of personal and environmental conditions. Stroke rehabilitation should be based on an awareness of this influence and address conditions that change with time and ageing during different phases after stroke.
探讨影响中风患者长期参与社交和休闲活动的因素。
本研究采用质性设计，运用扎根理论方法。数据收集基于对瑞典一个基于人群的中风队列中招募的10名首次中风15年后的患者进行的深入访谈。该研究还包括4名家庭成员。
随着时间的推移，中风意味着生活状况发生了变化，但逐渐趋于正常。参与社交和休闲活动受到一些随时间和年龄变化的个人及情境因素的影响。分析得出的核心因素包括个人特征、拥有社交和支持网络、依赖他人、有机会参与有价值的活动和情境、有参与的动机以及感觉有足够的参与能力。
尽管存在功能障碍，但中风后长期参与活动是可能的，但会受到一系列个人和环境因素的影响。中风康复应基于对这种影响的认识，并应对中风后不同阶段随时间和年龄变化的因素。
