Division of Occupational Therapy, Department of Neurobiology, Care Sciences, and Society, Karolinska Institutet, Stockholm, Sweden.
Health Medicine and Rehabilitation, Department of Health, Education and Technology, Luleå University of Technology, Luleå, Sweden.
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2282513. doi: 10.1080/17482631.2023.2282513. Epub 2023 Nov 27.
The aim was to illuminate the experiences of stroke survivors returning to everyday life in the year following stroke, in the context of client-centred rehabilitation.
Four men who participated in a client-centred rehabilitation program were followed during the first year after stroke. Semi-structured interviews were conducted, allbut the first in the participants' home. The data were analysed using a grounded theory approach.
The results revealed a process with the overarching core category; The "new" self becomes reality through challenging everyday experiences, and five main categories driving the process: 1) Striving for structure in a "new" chaotic world, 2) Homecoming an ambiguous experience, 3) Reaching the "new" self through reflections of self-understanding, 4) Socialising in new circumstances, and 5) Realising a new reality.
While in hospital, stroke survivors can have unrealistic expectations. When at home they can begin to realise their actual capacity . To find a "new" self after a stroke can involve time-consuming and taxing processes of reflections of self-understanding. Engagement in self-selected meaningful and valued activities can support stroke survivors' reconstruction of the "new" self but not all stroke survivors may succeed in finding their "new" self during the first year after stroke.
在以患者为中心的康复背景下,阐明中风患者在中风后一年内回归日常生活的体验。
对 4 名参加以患者为中心的康复计划的男性患者进行了为期一年的随访。在参与者的家中进行了半结构化访谈,但第一次除外。使用扎根理论方法对数据进行了分析。
研究结果揭示了一个具有总体核心范畴的过程:“新”自我通过应对日常挑战而成为现实,同时推动这一过程的有五个主要类别:1)在“新”混乱的世界中寻求结构,2)归家是一种模糊的体验,3)通过自我理解的反思来达到“新”自我,4)在新环境中社交,5)实现新的现实。
中风患者在住院期间可能会抱有不切实际的期望,而当他们回到家中时,才能够开始认识到自己的实际能力。在中风后找到“新”自我可能涉及到耗时且费力的自我理解反思过程。参与自我选择的有意义和有价值的活动可以支持中风患者重建“新”自我,但并非所有中风患者都能在中风后的第一年成功找到“新”自我。