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中风后寻找自我:以患者为中心的康复背景下的纵向定性研究。

In search of self after stroke: a longitudinal qualitative study in the context of client-centred rehabilitation.

机构信息

Division of Occupational Therapy, Department of Neurobiology, Care Sciences, and Society, Karolinska Institutet, Stockholm, Sweden.

Health Medicine and Rehabilitation, Department of Health, Education and Technology, Luleå University of Technology, Luleå, Sweden.

出版信息

Int J Qual Stud Health Well-being. 2023 Dec;18(1):2282513. doi: 10.1080/17482631.2023.2282513. Epub 2023 Nov 27.

DOI:10.1080/17482631.2023.2282513
PMID:38010156
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11000675/
Abstract

PURPOSE

The aim was to illuminate the experiences of stroke survivors returning to everyday life in the year following stroke, in the context of client-centred rehabilitation.

METHODS

Four men who participated in a client-centred rehabilitation program were followed during the first year after stroke. Semi-structured interviews were conducted, allbut the first in the participants' home. The data were analysed using a grounded theory approach.

RESULTS

The results revealed a process with the overarching core category; The "new" self becomes reality through challenging everyday experiences, and five main categories driving the process: 1) Striving for structure in a "new" chaotic world, 2) Homecoming an ambiguous experience, 3) Reaching the "new" self through reflections of self-understanding, 4) Socialising in new circumstances, and 5) Realising a new reality.

CONCLUSIONS

While in hospital, stroke survivors can have unrealistic expectations. When at home they can begin to realise their actual capacity . To find a "new" self after a stroke can involve time-consuming and taxing processes of reflections of self-understanding. Engagement in self-selected meaningful and valued activities can support stroke survivors' reconstruction of the "new" self but not all stroke survivors may succeed in finding their "new" self during the first year after stroke.

摘要

目的

在以患者为中心的康复背景下,阐明中风患者在中风后一年内回归日常生活的体验。

方法

对 4 名参加以患者为中心的康复计划的男性患者进行了为期一年的随访。在参与者的家中进行了半结构化访谈,但第一次除外。使用扎根理论方法对数据进行了分析。

结果

研究结果揭示了一个具有总体核心范畴的过程:“新”自我通过应对日常挑战而成为现实,同时推动这一过程的有五个主要类别:1)在“新”混乱的世界中寻求结构,2)归家是一种模糊的体验,3)通过自我理解的反思来达到“新”自我,4)在新环境中社交,5)实现新的现实。

结论

中风患者在住院期间可能会抱有不切实际的期望,而当他们回到家中时,才能够开始认识到自己的实际能力。在中风后找到“新”自我可能涉及到耗时且费力的自我理解反思过程。参与自我选择的有意义和有价值的活动可以支持中风患者重建“新”自我,但并非所有中风患者都能在中风后的第一年成功找到“新”自我。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3de1/11000675/0c7b13956bb4/ZQHW_A_2282513_F0001_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3de1/11000675/0c7b13956bb4/ZQHW_A_2282513_F0001_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3de1/11000675/0c7b13956bb4/ZQHW_A_2282513_F0001_OC.jpg

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本文引用的文献

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The Impact of Sex and Gender on Stroke.性别对脑卒中的影响。
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2
Longitudinal Qualitative Methods in Health Behavior and Nursing Research: Assumptions, Design, Analysis and Lessons Learned.健康行为与护理研究中的纵向定性方法:假设、设计、分析及经验教训
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Participation in social and leisure activities while re-constructing the self: understanding strategies used by stroke survivors from a long-term perspective.
脑损伤后参与在线对等小组的生活体验:现象学研究
J Med Internet Res. 2025 Mar 25;27:e67658. doi: 10.2196/67658.
在重建自我的同时参与社交和休闲活动:从长期视角理解中风幸存者所采用的策略。
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Activities in Daily Living: The development of a new client-centred ADL intervention for persons with stroke.日常生活活动:为中风患者开发一种新的以客户为中心的 ADL 干预措施。
Scand J Occup Ther. 2022 Feb;29(2):104-115. doi: 10.1080/11038128.2020.1849392. Epub 2020 Dec 9.
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Listening to the client voice - A constructivist grounded theory study of the experiences of client-centred practice after stroke.倾听客户声音——中风后以客户为中心的实践体验的建构主义扎根理论研究。
Aust Occup Ther J. 2020 Apr;67(2):100-109. doi: 10.1111/1440-1630.12627. Epub 2019 Dec 15.
6
Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis.丹麦和挪威卒中后第一年的生活质量体验。一项定性分析。
Int J Qual Stud Health Well-being. 2019 Dec;14(1):1659540. doi: 10.1080/17482631.2019.1659540.
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Person-centered rehabilitation care and outcomes: A systematic literature review.以人为中心的康复护理及效果:系统文献回顾。
Int J Nurs Stud. 2019 May;93:74-83. doi: 10.1016/j.ijnurstu.2019.02.012. Epub 2019 Feb 26.
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Analyzing variations in changes over time: development of the Pattern-Oriented Longitudinal Analysis approach.分析随时间变化的差异:模式导向的纵向分析方法的发展。
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Experiences of returning to work and maintaining work 7 to 8 years after a stroke: a qualitative interview study in Sweden.中风后7至8年重返工作岗位并维持工作的经历:瑞典的一项定性访谈研究
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