Norlander Anna, Iwarsson Susanne, Jönsson Ann-Cathrin, Lindgren Arne, Månsson Lexell Eva
Department of Health Sciences, Lund University, Lund, Sweden.
Department of Neurology, Rehabilitation Medicine, Memory Disorders and Geriatrics, Skåne University Hospital, Lund, Sweden.
Disabil Rehabil. 2022 Aug;44(16):4284-4292. doi: 10.1080/09638288.2021.1900418. Epub 2021 Mar 28.
To further understand social and leisure (SL) participation after stroke and how it can be supported in a long-term perspective, this study aims to deepen the understanding of strategies used by long-term stroke survivors in relation to SL activities.
The study has a qualitative design, using a grounded theory approach, and is based on in-depth interviews with 10 persons who had a stroke 15 years ago and four of their family members.
The findings comprise nine different strategies used by the participants. These had two overarching purposes; to protect and re-construct the post-stroke self and to enable participation in valued SL activities despite challenges. The findings are summarized in one overarching theme: "Employing different strategies to balance costs and rewards of engagement in social and leisure activities".
Strategies for SL participation involves balancing different priorities in life and can change over time as they are continuously influenced by various personal and environmental conditions. These findings contribute to an improved understanding of why and how people hold on to activities, give up activities and find new activities after a stroke. It also highlights the need for a long-term perspective on stroke rehabilitation and support.IMPLICATIONS FOR REHABILITATIONRe-engagement in social and leisure activities after stroke is a long-term process and various types of support may be needed during different stages of recovery and adaptation.Successful rehabilitation interventions build on an understanding of each individual's priorities, goals and strategies and how these may change or manifest over time.Special attention should be given to the individual's perception of costs and benefits in relation to engagement in activities, and the role that it has for the person's identity.By providing knowledge and supporting the use of adequate coping strategies, rehabilitation professionals can help patients find a new and accepted post-stroke identity.
为了进一步了解中风后的社交和休闲（SL）参与情况以及如何从长期角度提供支持，本研究旨在加深对长期中风幸存者在SL活动方面所采用策略的理解。
本研究采用定性设计，运用扎根理论方法，基于对10名15年前中风患者及其4名家庭成员的深入访谈。
研究结果包括参与者使用的9种不同策略。这些策略有两个总体目的；保护和重建中风后的自我，以及尽管面临挑战仍能参与有价值的SL活动。研究结果总结为一个总体主题：“采用不同策略平衡参与社交和休闲活动的成本与收益”。
SL参与策略涉及平衡生活中的不同优先事项，并且会随着时间推移而变化，因为它们不断受到各种个人和环境条件的影响。这些发现有助于更好地理解人们在中风后坚持活动、放弃活动和寻找新活动的原因及方式。它还强调了中风康复和支持需要长期视角。
对康复的启示
中风后重新参与社交和休闲活动是一个长期过程，在恢复和适应的不同阶段可能需要各种类型的支持。
成功的康复干预基于对每个人的优先事项、目标和策略的理解，以及这些如何随时间变化或显现。
应特别关注个体对参与活动的成本和收益的认知，以及它对个人身份的作用。
通过提供知识并支持使用适当的应对策略，康复专业人员可以帮助患者找到新的、被接受的中风后身份。
