Department of Gastroenterology, the Second Affiliated Hospital, School of Medicine, Zhejiang University, Hangzhou, China.
Inflamm Bowel Dis. 2018 Apr 23;24(5):925-929. doi: 10.1093/ibd/izy056.
The success of the Crohn's and Colitis Foundation of America (CCFA), now Crohn's and Colitis Foundation (CCF) has established a role model for developing countries with an increasing incidence of inflammatory bowel disease (IBD), including China. While there are shared etiopathogenetic pathways and clinical features in IBD between Eastern and Western countries, patients with IBD as well as health care professionals in China are facing distinctive challenges, including the fragmented and inconsistent health insurance, social support system, and three-tiered health care service. Financial burden remains to be a tremendous obstacle to the management of IBD. In addition, poor rapport between patients and clinicians, and the lack of properly trained IBD specialists makes a noticeable gap in the management of IBD between China and Western countries. The China Crohn's &Colitis Foundation (CCCF), closely following the successful model of CCF, was established under the same doctrine, and served as a non-profit, volunteer-driven organization dedicated to improving quality of life of patients in by IBD through education and training.
美国克罗恩病和结肠炎基金会(CCFA),现更名为克罗恩病和结肠炎基金会(CCF),已为发病率不断上升的炎症性肠病(IBD)发展中国家树立了榜样,中国也包括在内。虽然东西方国家的 IBD 具有共同的发病机制和临床特征,但中国的 IBD 患者和医护人员面临着独特的挑战,包括碎片化和不一致的医疗保险、社会支持系统以及三级医疗服务。经济负担仍然是 IBD 管理的巨大障碍。此外,患者与临床医生之间关系不佳,以及缺乏经过适当培训的 IBD 专家,使得中国与西方国家在 IBD 管理方面存在明显差距。中国克罗恩病与结肠炎基金会(CCCF)在与 CCF 相同的理念下成立,是一个非营利性、志愿者驱动的组织,通过教育和培训致力于提高 IBD 患者的生活质量。