Amsterdam Public Health Research Institute (APH), Department of Public and Occupational Health, Expertise Centre for Palliative Care, VU University Medical Center, P.O. Box 7057, 1007 MB, Amsterdam, The Netherlands.
Netherlands Institute for Health Services Research (NIVEL), P.O. Box 1568, 3500 BN, Utrecht, Netherlands.
BMC Palliat Care. 2018 Apr 24;17(1):67. doi: 10.1186/s12904-018-0320-6.
Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both the homeless and healthcare providers experience a lot of barriers. Therefore, providing palliative care that fits the needs and concerns of the homeless is a challenge to healthcare providers. This systematic review aims to summarize evidence about the concerns, palliative care needs and preferences of homeless people, as well as barriers and facilitators for delivering high quality palliative care.
PubMed, Embase, PsycINFO, CINAHL and Web of Science were searched up to 10 May 2016. Included were studies about homeless people with a short life expectancy, their palliative care needs and the palliative care provided, that were conducted in Western countries. Data were independently extracted by two researchers using a predefined extraction form. Quality was assessed using a Critical Appraisal instrument. The systematic literature review was based on the PRISMA statement.
Twenty-seven publications from 23 different studies met the inclusion criteria; 15 studies were qualitative and eight were quantitative. Concerns of the homeless often related to end-of-life care not being a priority, drug dependence hindering adequate care, limited insight into their condition and little support from family and relatives. Barriers and facilitators often concerned the attitude of healthcare professionals towards homeless people. A respectful approach and respect for dignity proved to be important in good quality palliative care.
A patient-centred, flexible and low-threshold approach embodying awareness of the concerns of homeless people is needed so that appropriate palliative care can be provided timely. Training, education and experience of professionals can help to accomplish this.
无家可归者常患有复杂和慢性共病,发病率高,死亡年龄比普通人群年轻得多。由于临终时身体、心理社会和成瘾问题的复杂组合,他们往往无法获得姑息治疗。无家可归者和医疗服务提供者都面临着很多障碍。因此,提供符合无家可归者需求和关注点的姑息治疗对医疗服务提供者来说是一个挑战。本系统综述旨在总结有关无家可归者的关注点、姑息治疗需求和偏好,以及提供高质量姑息治疗的障碍和促进因素的证据。
检索了 PubMed、Embase、PsycINFO、CINAHL 和 Web of Science,检索日期截至 2016 年 5 月 10 日。纳入了关于预期寿命较短的无家可归者、他们的姑息治疗需求和姑息治疗的研究,这些研究在西方国家进行。两位研究人员使用预先制定的提取表独立提取数据。使用Critical Appraisal 工具评估质量。系统文献综述基于 PRISMA 声明。
23 项不同研究的 27 篇出版物符合纳入标准;15 项研究为定性研究,8 项为定量研究。无家可归者的关注点通常涉及临终关怀不是优先事项、药物依赖阻碍了充分的护理、对自身状况的认识有限以及家人和亲戚的支持很少。障碍和促进因素通常涉及医疗保健专业人员对无家可归者的态度。尊重的态度和对尊严的尊重被证明是高质量姑息治疗的重要因素。
需要采取以患者为中心、灵活和低门槛的方法,体现对无家可归者关注点的认识,以便及时提供适当的姑息治疗。专业人员的培训、教育和经验可以帮助实现这一目标。