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家长对社区自闭症谱系障碍污名的看法:多地点样本中的测量验证和关联。

Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample.

机构信息

Division of General Pediatrics, Doernbecher Children's Hospital, Oregon Health & Science University, 707 SW Gaines St., Mail Code CDRC-P, Portland, OR, 97239, USA.

Oregon Health & Science University - Portland State University School of Public Health, Portland, OR, USA.

出版信息

J Autism Dev Disord. 2018 Sep;48(9):3199-3209. doi: 10.1007/s10803-018-3586-x.

Abstract

In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a single factor solution with 8 items showing good internal consistency. Regression modeling suggested that stigma score was associated with unmet ASD care needs but not therapy hours or therapy types. Child public insurance, parent nativity, number of children with ASD in the household, parent-reported ASD severity, and family structure, were associated with higher stigma score. The scale and the scale's associations with service use may be useful to those attempting to measure or reduce ASD stigma.

摘要

在这项研究中,我们开发了一个简短的、英文/西班牙文双语父母报告的感知社区自闭症谱系障碍(ASD)污名量表,并在一个有 ASD 儿童的拉丁裔和非拉丁裔白人父母的多地点样本中对其进行了测试。该量表的验证性因子分析支持一个有 8 个项目的单一因素解决方案,具有良好的内部一致性。回归模型表明,污名评分与未满足的 ASD 护理需求相关,但与治疗时间或治疗类型无关。儿童公共保险、父母出生地、家庭中 ASD 儿童的数量、父母报告的 ASD 严重程度和家庭结构与更高的污名评分相关。该量表及其与服务使用的关联可能对那些试图衡量或减少 ASD 污名的人有用。

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