Khanh Thi Loan, Mai Anh Thi Lan, Duong Thuy Linh, Nguyen Lan Anh
Faculty of Nursing and Midwifery, Hanoi Medical University, Hanoi, Vietnam.
Nam Dinh University of Nursing, 257 Han Thuyen Street, Nam Dinh City, Nam Dinh Province, Vietnam.
J Autism Dev Disord. 2025 Jul 3. doi: 10.1007/s10803-025-06942-5.
Parents of children with autism spectrum disability frequently encounter significant stigma. There has not been any research identifying all three types of stigma -perceived, self, and enacted-, especially none involving Vietnamese parents, nor exploring the experience of stigma due to language and cultural differences. This cross-sectional descriptive study aimed to identify factors associated with stigma among parents of children with autism spectrum disorder in Hanoi, Vietnam. Using a stratified sampling method, the study collected data from 846 parents at the National Children's Hospital and five special education centers for children with disabilities in Hanoi between February and October 2023 through structured self-administered questionnaires. The study identified several factors that influence the three types of stigma experienced by parents of children with ASD. Among parent-related factors, hours of sleep and marital status were significantly linked to all three stigma types, while parental age and economic status affected one or two types of stigma. Child-related factors such as age, disability duration, and disability levels were associated with all three stigma types, whereas health insurance schooling and gender were linked to one or two types. Additionally, distressed behaviours, social support, and caregiver burden were significant predictors of all three types of stigma, with caregiver burden emerging as the strongest predictor overall (β = 0.34, 0.42 and 0.31 respectively, p < 0.001). This study can assist in identifying populations at risk and suggests that healthcare professionals should provide effective personalized care and early interventions to reduce stigma for parents of children with ASD.
患有自闭症谱系障碍的儿童的父母经常会遭遇严重的污名化。目前尚无研究识别出所有三种类型的污名——感知污名、自我污名和 enacted 污名(译者注:此处 enacted 污名可能是指实际遭受的污名,原文未明确给出准确中文释义),尤其没有涉及越南父母的研究,也没有探讨因语言和文化差异导致的污名经历。这项横断面描述性研究旨在确定越南河内自闭症谱系障碍儿童的父母中与污名相关的因素。该研究采用分层抽样方法,于2023年2月至10月期间,通过结构化的自填问卷,从国立儿童医院和河内的五个残疾儿童特殊教育中心收集了846名家长的数据。该研究确定了几个影响自闭症谱系障碍儿童家长所经历的三种污名类型的因素。在与家长相关的因素中,睡眠时间和婚姻状况与所有三种污名类型均显著相关,而父母年龄和经济状况则影响一两种污名类型。与儿童相关的因素,如年龄、残疾持续时间和残疾程度,与所有三种污名类型都有关联,而健康保险、受教育程度和性别则与一两种污名类型相关。此外,困扰行为、社会支持和照顾者负担是所有三种污名类型的重要预测因素,照顾者负担总体上是最强的预测因素(β分别为0.34、0.42和0.31,p<0.001)。这项研究有助于识别有风险的人群,并表明医疗保健专业人员应提供有效的个性化护理和早期干预,以减少自闭症谱系障碍儿童家长的污名感。